The involvement of low literate elderly women in the development and distribution of cancer screening materials

List, Marcy A.; Lacey, Loretta F. Prat; Hopkins, E. J.; Burton, D. F.

doi:10.1097/00003727-199404000-00007

Cited by 19 publications

(17 citation statements)

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“…However, their knowledge of cancer and cancer screening was limited, often inaccurate, or confused. 8,32,[36][37] In mammography focus groups, Davis found many women confused mammograms with Pap smears and associated both with initiating sexual activity or pregnancy. 33 In focus groups of elderly women, List found women mistakenly believed that increased age protected them from getting cancer and that cervical cancer was unlikely in the absence of sexual activity or after menopause.…”

Section: Low Literacy and Communication With Regard To Cancer Screeningmentioning

confidence: 99%

“…33 In focus groups of elderly women, List found women mistakenly believed that increased age protected them from getting cancer and that cervical cancer was unlikely in the absence of sexual activity or after menopause. 37 In prostate focus groups, men confused a digital rectal exam with sigmoidoscopy and other screening procedures. 36 Participation in screening may also be compromised by terminology commonly used in provider/patient communication.…”

Section: Low Literacy and Communication With Regard To Cancer Screeningmentioning

confidence: 99%

“…8 In focus groups with older women, participants lacked understanding or were uncomfortable with such words as cervix, hysterectomy, or menopause. 37 Low health literacy is not only associated with limited health vocabulary, but also impacts individuals' understanding of the concept of screening and awareness of its benefits. Participants in focus groups and individual interviews in several studies thought screening was unnecessary if (1) they were not having sex; (2) if they looked and felt well; (3) if their breasts looked good; or (4) if they had no symptoms.…”

Section: Low Literacy and Communication With Regard To Cancer Screeningmentioning

confidence: 99%

“…They believed "if it ain't broke, don't fix it." 8,32,[37][38][39] Lannin 38 found this belief was a high predictor of late-stage breast cancer diagnosis in low-income AfricanAmerican women, many of whom believed that breast lumps are a normal part of a woman's blood system and "if they aren't bothering you, they are best left alone. "…”

Section: Low Literacy and Communication With Regard To Cancer Screeningmentioning

confidence: 99%

“…37,39,40 For many individuals with low literacy skills who do not commonly acquire knowledge through reading or discussions with health care professionals, the most memorable and detailed knowledge of cancer control tests is often derived from previous experiences of family members and friends who had a late-stage diagnosis. 40 In a prostate cancer study, three of the most frequently mentioned attitudes toward prostate cancer were fear, suffering, and death.…”

Section: Low Literacy and Communication With Regard To Cancer Screeningmentioning

confidence: 99%

See 4 more Smart Citations

Health Literacy and Cancer Communication

Davis

Williams

Marin

et al. 2002

CA: A Cancer Journal for Clinicians

569

492

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Health literacy is increasingly recognized as a critical factor affecting communication across the continuum of cancer care. We reviewed research on health literacy and examined its impact on cancer outcomes and communication. According to the National Adult Literacy Survey (NALS), considered the most accurate portrait of literacy in our society, about one in five American adults may lack the necessary literacy skills to function adequately in our society. As patients, such individuals are at a disadvantage in their capacity to obtain, process, and understand cancer information and services needed to make appropriate health care decisions. Patients with poor health literacy have a complex array of difficulties with written and oral communication that may limit their understanding of cancer screening and of symptoms of cancer, adversely affecting their stage at diagnosis. In addition, these barriers impair communication and discussion about risks and benefits of treatment options, and patient understanding of informed consent for routine procedures and clinical trials. More research is needed to identify successful methods for educating and communicating with patients who have limited health literacy. Based on our own experience, we offer practical communication aids that can help bridge the cancer communication gap.

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Section: Low Literacy and Communication With Regard To Cancer Screeningmentioning

confidence: 99%

Section: Low Literacy and Communication With Regard To Cancer Screeningmentioning

confidence: 99%

Section: Low Literacy and Communication With Regard To Cancer Screeningmentioning

confidence: 99%

Section: Low Literacy and Communication With Regard To Cancer Screeningmentioning

confidence: 99%

Section: Low Literacy and Communication With Regard To Cancer Screeningmentioning

confidence: 99%

See 3 more Smart Citations

Health Literacy and Cancer Communication

Davis

Williams

Marin

et al. 2002

CA: A Cancer Journal for Clinicians

569

492

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Developing culturally sensitive cancer genetics communication aids for African Americans

Baty

Kinney

Ellis

2003

American J of Med Genetics Pt A

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The goal of this project was to develop educational materials to communicate genetic health information in a culturally sensitive manner. These materials were designed to communicate information about cancer risk, genetic testing options, and health management options in an African American kindred with a known BRCA1 mutation. Educational materials were pilot-tested in four African American focus groups varying in socioeconomic status and gender. The audiotaped focus groups consisted of presentation of the educational materials, followed by a feedback session led by an African American facilitator. Qualitative analysis of the focus group transcripts identified important themes and the educational materials were revised in response to the participants' suggestions. The products included a booklet and a flip chart for use in educational sessions. Focus group participants recommended a substantial reduction in technical detail, and recommended that information be personalized and made relevant to the lives of the target population. Other critical themes included the importance of building trust in the medical system and avoiding words and images that have strong negative associations in the African American community. Strategies that were successful included nontechnical images to explain genetic concepts, clip art images to energize and personalize word slides, vibrant color, identifiably African American figures, and the development of themes relevant to many African Americans. The use of these materials in an ongoing study offering BRCA1 counseling and testing to a large, rural Louisiana-based kindred will provide additional feedback about the effectiveness of the culturally tailored genetic education and counseling materials.

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Patient Literacy Levels: A Consideration When Designing Patient Education Programs

Wilson

McLemore

1997

Rehabilitation Nursing

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The purposes of this study were to examine (a) the relationship between patients' own reports of the highest grade completed in school and their actual reading level and (b) the relationship between literacy and the level of knowledge about self-care after patients had received education involving written discharge instructions. In addition, the content of the materials was analyzed for its cultural sensitivity. Twenty-six patients who had had either hip- or knee-replacement surgery at an inner-city hospital participated in this correlational descriptive study. There was a significant negative relationship between patients' own reports of highest grade completed in school and their actual reading level (r = -.39, p < .05). Rehabilitation nurses should find this study beneficial for developing, assessing, and using written patient education materials appropriate for the reading level of their patient populations.

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The involvement of low literate elderly women in the development and distribution of cancer screening materials

Cited by 19 publications

References 0 publications

Health Literacy and Cancer Communication

Health Literacy and Cancer Communication

Developing culturally sensitive cancer genetics communication aids for African Americans

Patient Literacy Levels: A Consideration When Designing Patient Education Programs

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