The Metropolitan Atlanta Congenital Defects Program: 35 years of birth defects surveillance at the centers for disease control and prevention

Abstract

Since its inception, MACDP has served as a resource for the development of uniform methods and approaches to birth defect surveillance across the United States and in many other countries, monitoring birth defects rates, and as a case registry for various descriptive, etiologic, and survival studies of birth defects. MACDP has also served as a training ground for a large number of professionals active in birth defects epidemiology.

Major congenital anomalies: a five-year retrospective regional study in Turkey

“…Most children who are born with major congenital anomalies and survive infancy are affected physically, mentally or socially and can be at increased risk of morbidity due to various health disorders (Queisser-Luft et al, 1998;WHO, 2000;Correa-Villaseñor et al, 2003). While the prevalence of congenital anomalies at birth in developed countries is reported to be between 3-5%, those reported in Turkey before the 1990s were in general lower than this figure (Göynümer et al, 2005).…”

Prevalence of esophageal atresia among 18 international birth defects surveillance programs

“…All participating programs were also required to have a stable methodology of ascertainment and registration over the 10-year study period of 1998 to 2007. The following programs provided data for slightly different years: Slovak Republic, 2001Republic, to 2007Texas, 1997Texas, to 2006andUtah, 1999 to 2007. The main characteristics of the 18 participating programs in this study are reported in Table 1, with additional details available from the annual reports of the ICBDSR (http:// www.icbdsr.org; International Clearing-house for Birth Defects Surveillance and Research, 2008) and the National Birth Defects Prevention Network (http://www.nbdpn.org; National Birth Defects Prevention Network, 2008), and from selected publications from individual programs (Mutchinick et al, 1988;Czeizel, 1997;Correa-Villasenor et al, 2003;Castilla and Orioli, 2004;De Vigan et al, 2005;Feldkamp et al, 2005;Bower et al, 2009;Lowry RB et al, 2009 Total prevalence per 10,000 births was defined as the total number of cases among live births, stillbirths, and ETOPFA divided by the total number of all births (live births and stillbirths) in the population. Spontaneous abortions were not considered.…”

Birth Outcomes Following West Nile Virus Infection of Pregnant Women in the United States: 2003-2004

“…Observed frequencies of major birth defects, spontaneous abortions, preterm births, and low birth weights were compared with population-based estimates. [19][20][21][22][23][24][25][26][27][28] Major birth defects were defined as structural or chromosomal abnormalities that can adversely affect health or development. 19,29 Results of routine infant checkups at 2, 6, and 12 months of age were collected from the child's health care provider.…”