The NutriQoL ® questionnaire for assessing health-related quality of life (HRQoL) in patients with home enteral nutrition (HEN): validation and fi rst results

Apezetxea, A.; Carrillo, Lourdes; Casanueva, Felipe F.; Cuerda, C.; Cuesta, Federico; Irles, J. A.; Virgili, María Nuria; Layola, M.; Lizán, Luís

doi:10.20960/nh.769

Cited by 17 publications

(32 citation statements)

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“…This questionnaire, NutriQoL®, consists of 17 items and evaluates QoL in two dimensions (physical performance, daily life activities, and social aspects). This questionnaire is reported to be valid, reliable and even if lowly sensitive to change it seems to be useful to measure QoL in this population [148,149].…”

Section: Grade Of Recommendation Gpp E Strong Consensus (92% Agreement)mentioning

confidence: 96%

ESPEN guideline on home enteral nutrition

et al. 2020

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This guideline will inform physicians, nurses, dieticians, pharmacists, caregivers and other home enteral nutrition (HEN) providers about the indications and contraindications for HEN, and its implementation and monitoring. Home parenteral nutrition is not included but will be addressed in a separate ESPEN guideline. This guideline will also inform interested patients requiring HEN. The guideline is based on current evidence and expert opinion and consists of 61 recommendations that address the indications for HEN, relevant access devices and their use, the products recommended, the monitoring and criteria for termination of HEN, and the structural requirements needed to perform HEN. We searched for metaanalyses, systematic reviews and single clinical trials based on clinical questions according to the PICO format. The evidence was evaluated and used to develop clinical recommendations implementing the SIGN method. The guideline was commissioned and financially supported by ESPEN and the members of the guideline group were selected by ESPEN.

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Section: Grade Of Recommendation Gpp E Strong Consensus (92% Agreement)mentioning

confidence: 96%

ESPEN guideline on home enteral nutrition

et al. 2020

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“…The settings where the studies included took place varied from the community such as HEN to acute hospitals [2,43,45] and these different settings may also influence the impact of enteral tube feeding on patients’ QoL. Methods of enteral feeding could be in the form of bolus, gravity and the use of stationary or mobile enteral feeding pumps and each of these enteral feeding methods have their advantages and drawbacks in terms of how they impact patients’ QoL [46]. For example, the long hours spent by patients who are connected to enteral feed/pump may affect family life, social activities and QoL [47] and the use of mobile pumps and carry bags are possible strategies for ameliorating these challenges.…”

Section: Discussionmentioning

confidence: 99%

“…The authors noted that these generic tools were not sensitive enough in identifying the effect of enteral tube feeding on patients’ QoL. Based on the process used in developing and validating the NutriQoL questionnaire, it was concluded that this measurement tool is valid, reliable and useful instrument for assessing the QoL of patients on HEN irrespective of the disease and/or the route of administration [46,49].…”

Section: Discussionmentioning

confidence: 99%

The Effect of Enteral Tube Feeding on Patients’ Health-Related Quality of Life: A Systematic Review

Ojo

Keaveney²,

Wang

et al. 2019

Nutrients

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Patients with functional gastrointestinal tract who are unable to meet their nutritional requirements may benefit from the use of enteral nutrition via feeding tubes which could be nasogastric, percutaneous endoscopic gastrostomy and jejunostomy. Although enteral tube feeding has been shown to promote nutritional status, improve wound healing, and enhance patients’ quality of life (QoL), evidence of tube and feed complications and reduced QoL has also been reported. Despite the increasing prevalence of patients on enteral tube feeding, no systematic review examining the role of enteral tube feeding on patients’ QoL appears to have been published. Aim: The aim of this systematic review is to evaluate the effect of enteral tube feeding on patients’ QoL. Method: Three databases (EMBASE, Pubmed, and PsycINFO) plus Google Scholar were searched for relevant articles based on the Population, Intervention, Comparator, Outcomes (PICO) framework. The review was in line with preferred reporting items for systematic reviews and meta-analyses (PRISMA) guidelines and involved the use of synonyms and medical subject headings. In addition, search terms were combined using Boolean operators (AND/OR) and all the articles retrieved were exported to EndNote for de-duplication. Results: Fourteen articles which met the criteria were included and three distinct areas were identified: the effect of early versus late enteral tube feeding on QoL; the QoL of patients on gastrostomy versus standard care, and the effect of enteral tube feeding on QoL. Overall, nine studies reported improvement in the QoL of patients on enteral tube feeding, while five studies demonstrated either no significant difference or reduction in QoL. Some factors which may have influenced these outcomes are differences in types of gastrostomy tubes, enteral feeding methods (including time patients spent connected to enteral feed/pump), and patients’ medical conditions, as well as the generic and/or type of QoL measuring instrument used. Conclusion: Most reviewed studies suggest that enteral tube feeding is effective in improving patients’ QoL. The use of enteral tube feeding-specific QoL measuring instruments is recommended for future research, and improved management strategies including use of mobile enteral feeding pumps should further enhance patients’ QoL. More studies on the effect of delivery systems/enteral feeding pumps on QoL are needed as research in this area is limited.

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“…The main objective of this study was to evaluate the QoL in patients receiving HEN, independent of their underlying disease and route of administration, through the validated NutriQoL questionnaire 5 to identify groups of risk whose QoL associated with HEN is more compromised, and, therefore, should receive special attention.…”

Section: Introductionmentioning

confidence: 99%

Specific Quality of Life Assessment by the NutriQoL® Questionnaire Among Patients Receiving Home Enteral Nutrition

Zamanillo-Campos

Ferrer

López

et al. 2020

J Parenter Enteral Nutr

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Background Home enteral nutrition (HEN), including tube feeding and oral supplementation, can improve or worsen quality of life (QoL). The specific assessment of factors affecting QoL may identify the inherent problems associated with HEN. The aim of this study was to evaluate whether the validated NutriQoL® questionnaire is useful for assessing the QoL and the factors influencing it in patients receiving HEN. Methods A total of 78 patients receiving HEN completed both the NutriQoL and the SF‐12 questionnaires during their routine visits to nutrition service at the hospital. Results Ninety percent of patients receiving HEN had cancer, 58% received oral supplements, and 42% received tube feeding. At recruitment, the mean score ± SD of the NutriQoL was 66 ± 14, whereas that of the SF‐12 was 40 ± 9. A positive correlation between NutriQoL and SF‐12 scores (ρ = 0.5; P < .001) was found. Multivariate analysis showed that HEN type (oral vs tube) (odds ratio [OR], 5.6; 95% CI 2.0–15.3; P = .001) and the absence of secondary effects (OR, 3.0; 95% CI, 1.2–7.9; P = .024) were both variables explaining NutriQoL results adjusted by sex and age. The SF‐12 results did not show associations with nutrition factors. On visit 2, we observed significant improvements in NutriQoL results. Conclusion The NutriQoL questionnaire identifies specific problems that affect the QoL of patients receiving HEN, whereas SF‐12 does not. The route of entry and the occurrence of complications influence specific QoL. NutriQoL is a useful tool to identify the factors that worsen the QoL in patients receiving HEN.

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The NutriQoL ® questionnaire for assessing health-related quality of life (HRQoL) in patients with home enteral nutrition (HEN): validation and fi rst results

Abstract: NutriQoL® is valid, reliable, even if lowly sensitive to change, and useful to measure HRQoL in this population. More studies are needed to know HRQoL in routine practice.

Cited by 17 publications

References 0 publications

ESPEN guideline on home enteral nutrition

ESPEN guideline on home enteral nutrition

The Effect of Enteral Tube Feeding on Patients’ Health-Related Quality of Life: A Systematic Review

Specific Quality of Life Assessment by the NutriQoL® Questionnaire Among Patients Receiving Home Enteral Nutrition

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