The Value of Patient-and Family-Centered Care

Abstract

JSTOR is a not-for-profit service that helps scholars, researchers, and students discover, use, and build upon a wide range of content in a trusted digital archive. We use information technology and tools to increase productivity and facilitate new forms of scholarship. For more information about JSTOR, please contact support@jstor.org.

Health Care Professionals’ Views of Sharing Information with Families Who Have a Child with a Genetic Condition

“…Patient and family-centered care has been in practice for over four decades (Allen and Petr 1998;Johnson 2000a, b). Since then, patient and family-centered care has been looked upon as the desired state of care; a state that health care professionals both strive towards and struggle with (Kelly 2007;Newton 2000;Powers et al 2000). Patient and family-centered care encompasses the acceptance and respect of both the patient and the family and their choices regarding health care, communication and sharing of information, and participation in care and collaboration (American Academy of Pediatrics Council on Children with Disabilities and Duby 2007;Johnson et al 2008;Powers et al 2000).…”

“…Since then, patient and family-centered care has been looked upon as the desired state of care; a state that health care professionals both strive towards and struggle with (Kelly 2007;Newton 2000;Powers et al 2000). Patient and family-centered care encompasses the acceptance and respect of both the patient and the family and their choices regarding health care, communication and sharing of information, and participation in care and collaboration (American Academy of Pediatrics Council on Children with Disabilities and Duby 2007;Johnson et al 2008;Powers et al 2000). Effective partnerships and communication between families and health care professionals are critical to the success of developing therapeutic and collaborative working relationships (Levetown and American Academy of Pediatric Committee on Bioethics 2008), and they are influential in the interactions and decision making among health care professionals, patients, and their families (Reid Ponte and Peterson 2008).…”

A comprehensive systematic review of visitation models in adult critical care units within the context of patient- and family-centred care

“…Participation is especially important when preparing to discharge a patient and family who will need any type of direct care at home. Powers et al 15 . describe a pilot program trialled on three medical surgical units at one hospital to increase patient and family involvement in care.…”

Discharge Planning of Stroke Patients: the Relatives’ Perceptions of Participation

“…1998, Kerr & Smith 2001, Smith et al. 2004) indicates that the families lacked information in connection to discharge, and that the families also wanted to participate more in discharge planning (Powers et al. 2000, Grimmer et al.…”