Understanding and managing the impact of the COVID-19 pandemic and lockdown on patients with epilepsy

Assenza, Giovanni; Ricci, Lorenzo; Lanzone, Jacopo; Boscarino, Marilisa; Vico, Carlo; Narducci, Flavia; Sancetta, Biagio; Lazzaro, Vincenzo Di; Tombini, Mario

doi:10.1080/14737175.2022.2031984

Cited by 4 publications

(2 citation statements)

References 80 publications

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“…Apart from new-onset epilepsies due to SARS-CoV-2 infection, patients with pre-existing epilepsy have been greatly affected by COVID-19. Several studies have found that seizures in PWE worsened during the pandemic regardless of whether these patients were infected with COVID-19 ( 7 , 9 , 10 ). There are theoretical risks of seizure worsening in PWE with a SARS-CoV-2 infection.…”

Section: Discussionmentioning

confidence: 99%

“…Apart from new-onset epilepsies due to 2019-nCoV infection, the impact of COVID-19 on patients with pre-existing epilepsy had been immense. Several studies have reported on changes in seizure frequency among people with epilepsy (PWE) during the COVID-19 pandemic, regardless of whether these patients were infected with COVID-19 (7)(8)(9)(10). There were theoretical risks of seizure worsening in PWE with a 2019-nCoV infection, for example, seizures triggered by fever.…”

Section: Introductionmentioning

confidence: 99%

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Global landscape of COVID-19 and epilepsy research: A bibliometric analysis

Wang

Bai²,

Zhao³

et al. 2022

Front. Neurol.

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BackgroundA large number of papers regarding coronavirus disease 2019 (COVID-19) and epilepsy have been published since the declaration of the COVID-19 pandemic. However, there is no bibliometric analysis on these papers. In this study, we aimed to analyze the bibliometric characteristics of these papers, thus identifying the trends and future directions of COVID-19 and epilepsy research.MethodsScientific papers regarding COVID-19 and epilepsy were retrieved through searches of the Web of Science Core Collection database. Title, authors, contributing institute, country, source journal, times cited, and additional information were extracted from each selected paper. Microsoft Excel 2019 and GraphPad Prism 8 were used to analyze the extracted data and export the bar charts and tables whilst VOSviewer software was used to perform and visualize co-authorship analysis and co-occurrence analysis of keywords.ResultsA total of 317 papers regarding COVID-19 and epilepsy were included in the final analysis. Epilepsy & Behavior published the largest number of papers (n = 84). J. Helen Cross and Naoto Kuroda were the most prolific authors (n = 13 each). The United States (n = 88) and the University of London (n = 23) were the country and organization with the most contributions, respectively. The strongest authors' collaborations were between Giovanni Assenza and Jacopo Lanzone and between J. Helen Cross and Nathalie Jette. Selected author keywords were organized into seven clusters, and the keywords in clusters 1 and cluster 4 had the largest average appearing year of any clusters.ConclusionThis is the first bibliometric analysis of papers regarding COVID-19 and epilepsy. Our results showed that the United States was the leading country whilst J. Helen Cross was the most influential scholar in COVID-19 and epilepsy research. psychological consequences of COVID-19, and the safety of COVID-19 vaccines for people with epilepsy, are possible areas for future research on COVID-19 and epilepsy.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Global landscape of COVID-19 and epilepsy research: A bibliometric analysis

Wang

Bai²,

Zhao³

et al. 2022

Front. Neurol.

View full text Add to dashboard Cite

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FAMOSES-Epilepsie-Schulungen in Zeiten der COVID-19-Pandemie

Hagemann,

von Pfeil,

Pfäfflin

2023

Clin Epileptol

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Zusammenfassung Hintergrund Das modulare Schulungsprogramm FAMOSES (MOdulares Schulungsprogramm EpilepSie für FAmilien) bietet seit 20 Jahren Kindern mit Epilepsie und ihren Eltern die Möglichkeit, interaktiv Wissen über ihre Erkrankung und Bewältigungsstrategien zu erwerben. Ziel der Arbeit Es sollten die Auswirkungen der COVID-19-Pandemie auf FAMOSES-Schulungen in Bezug auf die Durchführbarkeit, Bewertungen durch die Trainerinnen und die Teilnehmerevaluation untersucht werden. Material und Methoden FAMOSES-Trainerinnen wurden mit dem neu entwickelten Fragebogen zu „Auswirkungen der Pandemie auf Epilepsieschulungen“ (PES) befragt. Für die Bewertung der Kurse durch die teilnehmenden Eltern und Kinder wurden die regulären Evaluationsbögen ausgewertet. Ergebnisse Die Zahl der durchgeführten Kurse war 2020 geringer als im Vor-Pandemie-Jahr 2019 (Eltern: p = 0,049, Kinder: p = 0,057) und stieg 2021 wieder etwas an. Die Planung war aus Sicht vieler Trainerinnen aufwendiger und unsicherer (z. B. durch Kursverbote, Zugangsbeschränkungen, Hygienekonzept). Es gab keine COVID-19-Ausbrüche im Zusammenhang mit den Kursen. Zur Bewertung der durchgeführten Kurse wurden sowohl positive als auch schwierige Aspekte genannt (z. B. lohnende Kurse, Familien/Eltern waren dankbar; anstrengendere Kurse, weniger locker, Mehrarbeit). Trotzdem hat sich die Einschätzung der Trainerinnen, „sehr gerne“ oder „gerne“ FAMOSES-Kurse durchzuführen, in den meisten Fällen (73 %) nicht durch die Pandemie geändert. Die Evaluation der Schulungen durch die teilnehmenden Eltern und Kinder zeigte während der Pandemie vergleichbare Bewertungen wie vor Pandemiebeginn. Diskussion Die Planung und Durchführung von FAMOSES-Schulungen ist während der COVID-19-Pandemie aufwendiger geworden. Die Schulungen, die durchgeführt wurden, sind von den Trainerinnen trotz kritischer Punkte vielfach positiv bewertet worden, und die Teilnehmerzufriedenheit war hoch.

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The impact of the COVID-19 pandemic on people with epilepsy and epilepsy specialists

Zhang,

Niu,

et al. 2023

Epilepsy & Behavior

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Understanding and managing the impact of the COVID-19 pandemic and lockdown on patients with epilepsy

Cited by 4 publications

References 80 publications

Global landscape of COVID-19 and epilepsy research: A bibliometric analysis

Global landscape of COVID-19 and epilepsy research: A bibliometric analysis

FAMOSES-Epilepsie-Schulungen in Zeiten der COVID-19-Pandemie

The impact of the COVID-19 pandemic on people with epilepsy and epilepsy specialists

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