Understanding how parents cope with living with someone with anorexia nervosa: Modelling the factors that are associated with carer distress

Abstract

Interventions aimed at improving outcome in AN may need to focus on reducing caregiving strains and carers' distress, particularly of mothers.

Family functioning and maternal distress in adolescent girls with anorexia nervosa

“…Elevated family problems and distress in adolescent anorexia has been well established. 27 It might come as a surprise, however, to learn that these families, while under distress, were fundamentally strong. Specifically, in contrast to expectations, there were no differences between girls with AN and those from the community on family cohesion and expressiveness.…”

“…50,51 Unlike what might be the case for IDDM, mothers of girls with AN may wrongly blame themselves for their daughters' condition, and research suggests that self-blame often leads to feelings of shame and guilt, 52 reducing a parent's effectiveness in supporting their child's recovery, 27 and this only furthers the emotional stress of the condition on family members. Moreover, a parent of a child with an eating disorder may feel that they have failed in a central task of parenting, that of feeding ones child.…”

“…24 Because AN has been found to place a strain on parenting, 25 this study examined parenting competence and satisfaction. Given the emotional cost of living with a child with a chronic illness, 26,27 we investigated both maternal worry and depression. Likewise, we examined mothers' emotional representations of the illness with regard to the perceived emotional impact of the illness.…”

Valoración del estado de salud y psicopatología de los familiares en el trastorno del comportamiento alimentario : diferencias entre cuidadores principales y secundarios

“…Los tratamientos de los pacientes con trastornos de la conducta alimentaria (TCA) son prolongados y costosos, y un 20% de los casos se cronifi can (Morande, Celada, y Casas, 1999;Ratnasuriya, Eisler, Szmukler, y Russell, 1991). En contraste, estudios sobre los cuidadores de personas con trastornos del comportamiento alimentario han recibido menos atención científi ca aunque se han incrementado en esta última década (Highet, Thompson, y King, 2005;Kyriacou, Treasure, y Schmidt, 2008a;Kyriacou, Treasure, y Schmidt, 2008b;Monteleone, Treasure, Santonastaso, Favaro, y Brambilla, 2005;Sepulveda et al, 2009;Graap et al, 2008b;Winn et al, 2006). En un estudio sobre una amplia muestra de familias con un paciente psiquiátrico y de diferentes patologías (esquizofrenia, TCA, depresión mayor, trastor-una tendencia a la cronicidad y deterioro psicosocial.…”

Construção de sentidos sobre a participação do pai no tratamento de filhas com diagnóstico de transtornos alimentares

“…Nesse ponto, é válido apontar que, de uma perspectiva construcionista social, essa descrição desnaturaliza o princípio de que os grupos psicológicos e outras formas de assistência como forma de apoio aos familiares são imprescindíveis, incluindo o pai, levando em conta o discurso do grande impacto emocional que a emergência desse transtorno causaria não só no paciente, mas em todos os membros familiares (Bernardi et al, 2005;Bruch, 1978;Kyriacou et al, 2008;Oliveira & Santos, 2006;Santos, 2006;Zabala et al, 2009). Diversos trabalhos confirmaram o alto nível de estresse dos familiares cuidadores dos pacientes com transtornos alimentares, ao mesmo tempo que outros estudos buscavam apontar as necessidades que esses cuidadores apresentam quando convivem diariamente com a problemática (Taneyoshi, 2008;Treasure et al, 2008;Whitney et al, 2007;Winn et al, 2004).…”