Understanding the experiences and needs of South Asian families caring for a child with learning disabilities in the United Kingdom: an experiential–contextual framework

Heer, Kuljit; Rose, John; Larkin, Michael

doi:10.1080/09687599.2012.699276

Cited by 20 publications

(24 citation statements)

References 27 publications

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“…While a number of researchers appear to have taken Stuart's recommendation to construct 'a separate and distinct identity for black disabled people ' (1992, 187) to heart, the number and range of studies remains limited and outside the central focus of disability studies. Heer, Rose, and Larkin (2012) emphasise the limited research into cultural factors influencing the experiences of families caring for a disabled person. They present an experiential-contextual framework of disability to help visualise and understand how the 'minority experience' interacts with services which are still largely based in the medical model, on the one hand, and the range of barriers encountered in society based on negative attitudes to disability and the physical environment, as explained by the social model, on the other.…”

Section: Introductionmentioning

confidence: 99%

“…They present an experiential-contextual framework of disability to help visualise and understand how the 'minority experience' interacts with services which are still largely based in the medical model, on the one hand, and the range of barriers encountered in society based on negative attitudes to disability and the physical environment, as explained by the social model, on the other. Heer, Rose, and Larkin (2012) point out that neither the social model nor the medical model on its own can capture the lived experience of any disabled person, but particularly those from minority populations. For example, the medical model is based on western conceptions which do not tend to correspond with traditional interpretations of disability more common in South Asian communities.…”

Section: Introductionmentioning

confidence: 99%

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Using participatory and creative methods to facilitate emancipatory research with people facing multiple disadvantage: a role for health and care professionals

Kramer-Roy

2015

Disability & Society

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Using participatory and creative methods to facilitate emancipatory research with people facing multiple disadvantage: a role for health and care professionals

Kramer-Roy

2015

Disability & Society

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“…Autism public awareness and education campaigns may encourage social interactions to support contact between people with ASD and the public. (Gillespie-Lynch et al, 2015;Heer et al, 2012). Allport (1954) proposed that contact between members of different groups under certain conditions can work to reduce prejudice and intergroup conflict.…”

mentioning

confidence: 99%

Public attitudes to people with ASD: contact, knowledge and ethnicity

Gemegah

Hartas

Totsika

2020

AIA

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Purpose The increase in autism prevalence and presentation in the media suggests a rise in public awareness. This paper aims to explore what factors (contact, knowledge and ethnicity) may be associated to positive attitudes towards individuals with autism spectrum disorder (ASD). Design/methodology/approach An online survey examined contact with and knowledge of ASD among Black, Asian and White ethnic groups to predict public attitudes to people with ASD. Findings In multiple regression models, the results suggested that the level of contact predicts positive attitudes towards autism when demographic factors were accounted. The level of knowledge about autism were significantly associated to attitudes, but not consistently when demographic factors were accounted. However, differences in knowledge and attitudes to people with ASD were identified amongst Black, Asian and White ethnic groups. Research limitations/implications These findings have implications for policy and public health and education campaigns, including ensuring contact and knowledge of autism among the public. Originality/value These findings have implications for policy and public health and education campaigns, including ensuring contact and knowledge of autism among the public. Additionally, further effort is required to target public knowledge and attitudes to autism, particularly among ethnic groups. Institutional support tailored to encourage structured and unstructured contact across public domains such as education, health, social and care practices could effectively reduce prejudice between the public and people with ASD over time.

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“…South Asian maternal roles and understanding are influenced by multiple realities such as culture, religion, language and migration history intersecting with macro‐factors like health and immigration policy. These intersectionalities suggest ethnic‐minority experiences are contextually different from White British disabled families (Heer, Rose and Larkin, ).…”

Section: Multidimensional Contextsmentioning

confidence: 99%

“…South Asian maternal roles and understanding are influenced by multiple realities such as culture, religion, language and migration history intersecting with macro-factors like health and immigration policy. These intersectionalities suggest ethnic-minority experiences are contextually different from White British disabled families (Heer, Rose and Larkin, 2012). Shah (1995) suggests South Asian literature corrals misunderstandings and barriers under religio-cultural and language factors, discarding other macro-level factors.…”

Section: Multidimensional Contextsmentioning

confidence: 99%

Exploring British Pakistani mothers’ perception of their child with disability: insights from a UK context

Rizvi

2015

Research in Spec Educ Needs

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This research lends insight into disabling discourses on South Asian families of children with disabilities. It explores immigrant Pakistani maternal understanding of their children's disability, uniquely through an educational perspective, highlighting maternal roles which schools must acknowledge to improve outcomes for children. The findings of this research, supported by a literature review, highlight various ideological threads shaping maternal understanding of disability and their children's schooling experiences. Data were collected through multiple case studies of immigrant Pakistani mothers of disabled children at Westchester School, incorporating semi‐structured interviews and reviewing pupils’ school files. After a process of open coding, the main themes emerging from interviews suggested maternal perceptions of disability evolved from a medicalised lens, onto identifying with structural barriers to children's progress, and a gendered lens. Both maternal perceptions and their professional interactions determined maternal accounts of their children's schooling experiences. This research highlights positive familial factors shaping maternal understanding of disability, supporting further studies into maternal advocacy and empowerment within UK special education.

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Understanding the experiences and needs of South Asian families caring for a child with learning disabilities in the United Kingdom: an experiential–contextual framework

Cited by 20 publications

References 27 publications

Using participatory and creative methods to facilitate emancipatory research with people facing multiple disadvantage: a role for health and care professionals

Using participatory and creative methods to facilitate emancipatory research with people facing multiple disadvantage: a role for health and care professionals

Public attitudes to people with ASD: contact, knowledge and ethnicity

Exploring British Pakistani mothers’ perception of their child with disability: insights from a UK context

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