2015),"It can still happen here: systemic risk factors that may contribute to the continued abuse of people with intellectual disabilities", Tizard Learning Disability Review, Vol. 20 Iss 3 pp. 134-146 http://dx.If you would like to write for this, or any other Emerald publication, then please use our Emerald for Authors service information about how to choose which publication to write for and submission guidelines are available for all. Please visit www.emeraldinsight.com/authors for more information.
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AbstractPurpose -The purpose of this paper is to explore the role of culture in shaping the caregiving experiences of British South Asian families caring for a child with developmental disabilities in the UK. In particular it explores how the coexistence of two distinct cultures (British/South Asian) impacts upon these caregiving experiences. Design/methodology/approach -A qualitative design using in-depth interviews and interpretative phenomenological analysis was used with seven parents identifying as British South Asian who had been born in the UK or had moved to the UK as young people. Findings -Three master themes emerged: living with loss, uncertainty and overwhelming responsibility; learning about disability and facing stigma; and having to cope. Research limitations/implications -Using a relatively homogeneous sample of carers this study provides an insight into how exposure to two different cultures shapes the understanding and adaptations of British South Asian carers in the UK. Social implications -Issues in the acculturation of these parents emerge which demonstrate the tensions they face in relating to both South Asian and Western cultural influences. The study makes recommendations for how services can work with such families in order to help them make sense of their children's disability, access culturally appropriate support and cope with the numerous demands of being a caregiver. Originality/value -This paper contributes to a growing literature on the experience of South Asian parents who care for children with intellectual disabilities. It has important messages for workers about how to support these individuals most effectively.There is little research exploring how British South Asians in the UK make sense of and handle their relationship with two cultures. A small number of studies have explored identity formation amongst South Asians living in Britain and found differences in acculturation attitudes amongst
Purpose -This study aims to explore the cultural context of care-giving amongst South Asian communities caring for a child with intellectual disabilities in the United Kingdom. Design/methodology/approach -in the context of the United Kingdom's Children's Intellectual Disability Services, the study set out to develop a culturally sensitive account of Sikh and Muslim parents' experiences of caring for a child with intellectual disabilities. Focus groups were conducted with parents from Sikh and Muslim support groups who were all accessing intellectual disability services for their children. Transcripts were analyzed using Interpretative phenomenological analysis, a qualitative technique.
Findings -Three master themes emerged from the analysis which were: Making sense of the disability; Feeling let down by services and Looking to the future. These themes reinforce findings from previous research particularly in relation to difficulties when making sense of the disabilities and difficult interactions with services.
Practical implications -The study makes recommendations for service delivery to ethnic minority groups including being aware of intra-group variations in the interpretations and responses of South Asian parents.Originaiity/vaiue -Ultimately the study makes recommendations for developing culturally sensitive support and interventions for ethnic minority groups which is important given the increase in multi-ethnic populations in the UK.
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