Validity And Reliability Of Lupus Quality Of Life Questionnaire In Patients With Systemic Lupus Erythematosus In Indonesia

Anindito, Bagus; Hidayat, Rudy; Koesnoe, Sukamto; Dewiasty, Esthika

doi:10.37275/ijr.v8i2.60

Cited by 7 publications

(4 citation statements)

References 22 publications

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“…4 44 In the original derivation of LupusQoL, although only women of two racial ethnicities were involved, white and South Indians, subsequent validations included a wider population as well as men. 4 Reliability (internal consistency and test-retest) Internal consistency of LupusQoL domains was assessed in three studies [44][45][46] and Cronbach's α ranged from 0.85 to 0.94 across studies and domains (online supplementary table S7). Assessment of the test-retest reliability of LupusQoL indicated intraclass correlations (ICCs) ranging from 0.68 to 0.95 (online supplementary table S7), 4 45 46 (table 3).…”

Section: Content Validitymentioning

confidence: 99%

Measurement properties of selected patient-reported outcome measures for use in randomised controlled trials in patients with systemic lupus erythematosus: a systematic review

Strand

Simon²,

Touma

2020

Lupus Sci Med

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ObjectiveThe heterogeneous multisystem manifestations of SLE include fatigue, pain, depression, sleep disturbance and cognitive dysfunction, and underscore the importance of a multidimensional approach when assessing health-related quality of life. The US Food and Drug Administration has emphasised the importance of patient-reported outcomes (PROs) for approval of new medications and Outcome Measures in Rheumatology has mandated demonstration of appropriate measurement properties of selected PRO instruments.MethodsPublished information regarding psychometric properties of the Medical Outcomes Survey Short Form 36 (SF-36), Lupus Quality of Life Questionnaire (LupusQoL) and Functional Assessment of Chronic Illness Therapy-Fatigue Scale (FACIT-F), and their suitability as end points in randomised controlled trials (RCTs) and longitudinal observational studies (LOS) were assessed. A search of English-language literature using MEDLINE and EMBASE identified studies related to development and validation of these instruments. Evidence addressed content validity, reliability (internal consistency and test-retest reliability), construct validity (convergent and divergent) and longitudinal responsiveness, including thresholds of meaning and discrimination.ResultsAll instruments demonstrated strong internal consistency, reliability and appropriate face/content validity, indicating items within each instrument that measure the intended concept. SF-36 and LupusQoL demonstrated test-retest reliability; although not published with FACIT-F in SLE supported by evidence from other rheumatic diseases. All instruments demonstrated convergent validity with other comparable PROs and responsivity to treatment.ConclusionThe measurement properties of PRO instruments with published data from RCTs including: SF-36, LupusQoL and FACIT-F indicate their value as secondary end points to support labelling claims in RCTs and LOS evaluating the efficacy of SLE treatments.

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Section: Content Validitymentioning

confidence: 99%

Measurement properties of selected patient-reported outcome measures for use in randomised controlled trials in patients with systemic lupus erythematosus: a systematic review

Strand

Simon²,

Touma

2020

Lupus Sci Med

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“…3 Research showed that the quality of life of SLE patients decreased compared to the general population. 4 In addition, the quality of life of patients with SLE was lower than other chronic diseases, 5 both in physical and mental dimensions.…”

Section: Introductionmentioning

confidence: 99%

The Role of Perceived Social and Spiritual Support and Depression to Health-related Quality of Life on Patients with SLE

Nugraha

Poerwandari

Lubis

2021

Glob Med Health Commun

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Belief in the availability of social support (perceived social support) was known to influence depression and health-related quality of life in SLE patients. This support becomes a psychological resource when they experience negative emotional states such as depression caused by a chronic illness such as SLE. In people whose lives are influenced by religion, such as in Indonesian culture, belief in God's help (perceived spiritual support) is an important variable that needs to be studied because it is predicted to affect patients’ health-related quality of life. This study aims to explain the relationship between perceived social support, spiritual support, and depression to health-related quality of life in a patient with SLE. This cross-sectional study was conducted from March to June 2021 towards 328 SLE patients selected using the convenient sampling technique. Data was collected through forms that are distributed online and offline. The research sample was SLE patients who were members of a lupus community in Indonesia and lived in several cities in Java. The statistical analysis using a structural model (CMIN/df=103, RMSEA=0.103, CFI=0.972, TLI=0.963). Chi-square value=201,835 (p=0.000) suggested that perceived social support directly affected the level of depression and health-related quality of life on a patient with SLE, while perceived spiritual support affected the health-related quality of life through the mediation of depression, which means that spiritual support affected the quality of life by reducing negative emotions experienced by SLE patients. PERAN DUKUNGAN SOSIAL, SPIRITUAL, DAN DEPRESI TERHADAP KUALITAS HIDUP TERKAIT KESEHATAN PASIEN SLEKeyakinan akan ketersediaan dukungan sosial (perceived social support) diketahui memengaruhi depresi dan kualitas hidup terkait kesehatan pada pasien SLE. Dukungan ini diyakini menjadi sumber daya psikologis saat individu berada dalam kondisi emosi yang negatif seperti depresi yang disebabkan oleh penyakit kronis seperti SLE. Pada masyarakat yang kehidupannya dipengaruhi oleh agama seperti di Indonesia, keyakinan akan pertolongan Tuhan (perceived spiritual support) merupakan variabel penting yang perlu dipelajari karena diprediksi memengaruhi kualitas hidup terkait kesehatan. Penelitian ini bertujuan menjelaskan mekanisme hubungan antara perceived social support, spiritual support, dan depresi terhadap kualitas hidup terkait kesehatan pasien SLE. Penelitian cross-sectional ini dilakukan dari Maret hingga Juni 2021 pada 328 pasien SLE yang dipilih dengan convinient sampling technique. Data dikumpulkan melalui formulir yang disebarkan secara daring dan luring. Sampel penelitian merupakan pasien SLE yang tergabung dalam suatu komunitas lupus dan berdomisili di beberapa kota di pulau Jawa. Hasil analisis statistik dengan model struktural (CMIN/df=103; RMSEA=0,103; CFI=0,972; TLI=0,963). Nilai chi-square=201.835 (p=0,000) memperlihatkan bahwa perceived social support berpengaruh secara langsung pada tingkat depresi dan kualitas hidup pasien SLE. Sementara itu, perceived spiritual support memengaruhi kualitas hidup terkait kesehatan melalui mediasi depresi yang berarti bahwa spiritual support memengaruhi kualitas hidup dengan mengurangi kondisi emosi negatif yang dirasakan oleh pasien SLE.

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“…This study also has some limitations. Validity and reliability tests for other quality of life instrument did not just only analyze the validity by referring to its Pearson's r value, but also did other validity tests such as convergent and discriminant validity, known-groups validity, and also factor analysis [6][7][8][12][13][14]. Further validity and reliability test in other groups is also needed.…”

Section: Discussionmentioning

confidence: 99%

Construct Validity and Reliability of Indonesian Version of RAND SF-36 Quality of Life Questionnaire in Breast Cancer Patients

Ramadhanty

Yarsa

Probandari

2019

Indonesian Journal of Cancer

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Background: The number of breast cancer patients in Indonesia is increasing but there are still only a few researches that assess their quality of life. RAND SF-36 is a quality of life instrument that is widely used. In Indonesia, the validity and reliability of the instrument is still under development, especially in breast cancer patients. Various health status questionnaires have been used in physical rehabilitation studies involving patient with pacemaker, but for women with breast cancer, the usefulness of these questionnaires as measures of physical, mental, and social well-being has not been firmly established. Methods: A previously validated RAND SF-36 questionnaire in patients with pacemaker was given to 252 breast cancer survivor community members. We assessed the construct validity and the reliability by referring to its Pearson’s r table value and Cronbach’s α coefficient. Results: One hundred and fourteen breast cancer survivor community members participated and completed all 36 questions of the instrument between September- November 2018. Questions number 2, 28, and 35 showed lower Pearson’s r value (r<0,300) than other questions but still showed r value of >0.1548 indicating that these questions were valid. Cronbach’s α coefficient >0.90 indicated good internal consistency. Conclusions: The Indonesian version of the SF-36 quality of life questionnaire is a suitable instrument and can be used for research in Indonesian breast cancer patients.

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Validity And Reliability Of Lupus Quality Of Life Questionnaire In Patients With Systemic Lupus Erythematosus In Indonesia

Cited by 7 publications

References 22 publications

Measurement properties of selected patient-reported outcome measures for use in randomised controlled trials in patients with systemic lupus erythematosus: a systematic review

Measurement properties of selected patient-reported outcome measures for use in randomised controlled trials in patients with systemic lupus erythematosus: a systematic review

The Role of Perceived Social and Spiritual Support and Depression to Health-related Quality of Life on Patients with SLE

Construct Validity and Reliability of Indonesian Version of RAND SF-36 Quality of Life Questionnaire in Breast Cancer Patients

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