Validity and reliability of the Beck Depression Inventory II (BDI-II) in family caregivers of children with chronic diseases

Toledano‐Toledano, Filiberto; Contreras-Valdez, José Alfredo

doi:10.1371/journal.pone.0206917

Cited by 56 publications

(69 citation statements)

References 50 publications

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“…In the present study, the overall reliability was excellent (α = .92). [32] has also been adapted to a Mexican population [2]. The BDI-II evaluates the magnitude of individual depression.…”

Section: Participantsmentioning

confidence: 99%

“…Pediatric chronic diseases represent a central event constituting a major challenge for families; these diseases have physical, psychological, socioeconomic, and behavioral effects on patients and their family caregivers that translate into vulnerability and decreased quality of life and family functioning [1]. In the research literature, a family caregiver is defined as a person who has a significant emotional bond with the patient; this caregiver is a family member who is a part of the patient's family life cycle, offers emotional-expressive, instrumental, and tangible support, and provides assistance and comprehensive care during the chronic illness, acute illness, or disability of a child, adult, or elderly person [2]. The diagnosis of a chronic pediatric disease is an event that affects not only the patients but also their nuclear family; in this context of adversity, parents need to acquire skills that allow them to perform the medical and personal care that the pediatric patient with a chronic disease requires [3].…”

Section: Introductionmentioning

confidence: 99%

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Brief version of the coping health inventory for parents (CHIP) among family caregivers of children with chronic diseases

Toledano‐Toledano

Rubia

McCubbin

et al. 2020

Health Qual Life Outcomes

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Background: The Coping Health Inventory for Parents (CHIP) has demonstrated good psychometric properties in several language forms and has been used to assess the coping behaviors of families facing disease. However, the CHIP has not been validated in Mexico among families of children with chronic conditions, where it could be useful for research and intervention. The objectives of this instrumental study were to obtain a version of the CHIP for the Spanish language in Mexico, establish the factor structure of the Mexican version of the CHIP, probe its internal consistency reliability, and assess its concurrent construct validity. Methods: A nonprobability sample of 405 family caregivers of children with chronic diseases responded to a battery of measurement instruments that included the CHIP, the Beck Anxiety Inventory, and the Beck Depression Inventory. The sample was randomly divided into two parts. In one subsample (190 participants), an exploratory factor analysis was performed using a principal component analysis and oblique rotation. In the second subsample (215 participants), a confirmatory factor analysis was performed using maximum likelihood estimation. Results: The scale was reduced to 16 items (CHIP-16) with factorial loads greater than .50. The empirical criteria used to determine the number of factors converged on the following five factors: belief and trust (McDonald ω = .85), spouse/partner relationship (ω = .79), home care (ω = .77), family involvement (ω = .75), and security/ stability (ω = .79). The overall internal consistency was good (ω = .88). The five-factor model showed acceptable fit indices and high parsimony. The mean CHIP-16 scores and the Spouse/partner relationship scores among the caregivers with anxiety were greater than those among the caregivers without anxiety. The mean home-care scores among the women were greater than those among men. Conclusions: The 16-item version of the CHIP showed good internal consistency and construct validity; thus, the CHIP-16 is a useful instrument for measuring and assessing coping in family caregivers of children with chronic diseases.

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Section: Participantsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Brief version of the coping health inventory for parents (CHIP) among family caregivers of children with chronic diseases

Toledano‐Toledano

Rubia

McCubbin

et al. 2020

Health Qual Life Outcomes

Self Cite

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“…In addition, there is a tradition of family rehabilitation in China, so family caregivers are usually patients' primary caregivers. In the literature, 'a family caregiver is defined as a person who has a significant emotional bond with the patient; this caregiver is a family member who is a part of the patient's family life cycle; offers emotional-expressive, instrumental, and tangible support; and provides assistance and comprehensive care during the chronic illness, acute illness, or disability of a child, adult, or elderly person' [6]. Family caregivers play a key role in the management of patients with spinal tumours and often experience tremendous pressure and caregiving burden.…”

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confidence: 99%

Factors related to the burden of family caregivers of elderly patients with spinal Tumours in Northwest China

et al. 2020

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Background: Family caregivers of elderly patients with spinal tumours experience considerable pain and burden during the care process. This study aims to investigate the factors associated with caregiver burden in family caregivers of elderly patients with spinal tumours. Methods: A total of 220 elderly patients with spinal tumours (age ≥ 65 years) hospitalized at the spine centre of our hospital from January 2015 to December 2017 and their family caregivers were recruited for this cross-sectional study. All participants completed a sociodemographic questionnaire. Caregiver burden, social support and selfefficacy were assessed by the Chinese version of the Zarit Burden Interview (ZBI), the Social Support Rating Scale (SSRS) and the General Self-Efficacy Scale (GSE), respectively. The factors related to caregiver burden were analysed by multivariate analysis. P < 0.05 was considered statistically significant. Results: The 216 elderly patients with spinal tumours were 71.59 ± 8.49 years old, and their caregivers were 70.46 ± 9.13 years old. A total of 170 patients were cared for by their spouses, who accounted for 78.7% of all caregivers. The ZBI score for the family caregivers was 35.5 ± 7.5, and most caregivers (84.5%) reported a moderate or heavy burden. The factors related to caregiver burden included patient paralysis, the primary cancer site, chemotherapy and/or radiation, cognitive dysfunction, functional status, monthly income, pain score, caregivers' SSRS score, and GSE score. Conclusions: Most family caregivers of elderly patients with spinal tumours have a considerable caregiver burden. Interventions based on social support and self-efficacy can help reduce caregiver burden.

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“…Als Messgrößen für die QoL der Eltern bzw. der Erziehungsberechtigten wurden das Beck Depressions-Inventar II (BDI-II) [29] und die EuroQol Skala mit 5 Dimensionen und 3 Leveln (EQ-5D-3L) sowie die visuelle Analogskala (EQ-VAS) [30] verwendet.…”

Section: Methodenunclassified

Klinische Charakteristika, Ressourcenverbrauch, Lebensqualität und Versorgungssituation beim Dravet-Syndrom in Deutschland

et al. 2019

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Zusammenfassung Fragestellung Ziel der prospektiven, multizentrischen Studie ist die Erfassung klinischer Charakteristika, des Ressourcenverbrauches sowie der Lebensqualität bei Patienten mit der Diagnose eines Dravet-Syndroms (DS) und deren Eltern in Deutschland. Methoden Die Datenerhebung erfolgte mit einem validierten retrospektiven Fragebogen über 3 bzw. 12 Monate sowie mit einem prospektiven Tagebuch über 3 Monate. Es wurden Daten zur Anfallssituation, Medikamenteneinnahme, Therapieinanspruchnahme sowie zu direkten und indirekten Kosten und zur Lebensqualität erhoben. Die Fragebögen und das Tagebuch wurden den Eltern über den Dravet-Syndrom e. V. sowie beteiligte Zentren ausgehändigt. Ergebnisse Der Fragebogen wurde von 93 Eltern der DS-Patienten und das Tagebuch von 77 ausgefüllt. Das mittlere Alter der Patienten betrug 10 Jahre (Spannweite 15 Monate bis 33,7 Jahre). Die Zeit bis zur Syndromdiagnose eines DS war in den letzten beiden Jahrzehnten deutlich kürzer. In den letzten 12 Monaten ereignete sich bei 95 % der Patienten mindestens ein epileptischer Anfall. Als anfallsauslösende Faktoren wurden Fieber (93,4 %), Aufregung (56 %), Schlafmangel (51,6 %) und starke körperliche Anstrengung (50,5 %) berichtet. Die Lebenszeitprävalenz des Status epilepticus lag bei 77 %, und bei 28 % war mindestens 1 Episode eines Status epilepticus innerhalb des letzten Jahres aufgetreten. Die Lebensqualität (QoL) der Patienten war niedriger als die der Allgemeinbevölkerung, und von 46 % der Eltern wurden Depressionssymptome berichtet. Die direkten Kosten in 3 Monaten betrugen 6043 € pro Patient. Den größten Kostenfaktor stellten die stationären Kosten dar (1702 €), gefolgt von den Leistungen für Pflege (1130 €), den Kosten für die antikonvulsiven Medikamente (892 €) und für Therapien (559 €). Bei den Müttern betrugen die gesamten indirekten Kosten 4399 € und bei den Vätern 391 € bezogen auf 3 Monate. Schlussfolgerung Das Dravet-Syndrom ist mit häufigen, oft therapierefraktären epileptischen Anfällen und Status epilepticus vergesellschaftet. Diese Studie zeigt die erhebliche Krankheitslast und die damit verbundenen Einschränkungen in der Lebensqualität sowie die hohen direkten und indirekten Kosten auf. Um eine Verbesserung der Lebensqualität bei Patienten mit DS und deren Eltern zu erreichen, bedarf es neuer Therapie- und Versorgungskonzepte.

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Validity and reliability of the Beck Depression Inventory II (BDI-II) in family caregivers of children with chronic diseases

Cited by 56 publications

References 50 publications

Brief version of the coping health inventory for parents (CHIP) among family caregivers of children with chronic diseases

Brief version of the coping health inventory for parents (CHIP) among family caregivers of children with chronic diseases

Factors related to the burden of family caregivers of elderly patients with spinal Tumours in Northwest China

Klinische Charakteristika, Ressourcenverbrauch, Lebensqualität und Versorgungssituation beim Dravet-Syndrom in Deutschland

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