Validity of the Family Asthma Management System Scale with an Urban African-American Sample

Celano, Marianne; Klinnert, Mary D.; Holsey, Chanda Nicole; McQuaid, Elizabeth L.

doi:10.1093/jpepsy/jsp083

Cited by 39 publications

(37 citation statements)

References 27 publications

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“…The observed association for African American and NLW children in this study is consistent with previous research suggesting that childhood asthma management is embedded within the context of parent-child relationships and family interaction patterns (Klinnert, & Bender, 2002; Wamboldt, Wamboldt, Gavin, Roesler, & Brugman, 1995; Wood, Lim, Miller, Cheah, Simmens, et al, 2007). For example, high expressiveness and cohesion, and low conflict are related to better family asthma management (Celano et al, 2009), whereas high levels of parental criticism and negative affect are associated with poor asthma management (e.g., medication compliance) and greater asthma morbidity (Shalowitz, Berry, Quinn, & Wolf, 2001). …”

Section: Discussionmentioning

confidence: 99%

“…More effective family asthma management has been found to predict lower levels of functional impairment due to asthma (McQuaid et al, 2005) and has been associated with less parenting stress and better family functioning in low-income, African-American children (Celano et al, 2009). Additionally, caregivers’ perception of burden related to asthma management has been associated with decreased child quality of life (Fiese, Winter, Anbar, Howell, & Poltrock, 2008).…”

Section: Asthma Management In the Family Context: Increased Challengementioning

confidence: 99%

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The home environment and family asthma management among ethnically diverse urban youth with asthma.

Sato¹,

Kopel²,

McQuaid³

et al. 2013

Families, Systems, & Health

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While the pediatric psychology literature underscores the importance of illness related aspects of the home environment for optimal family asthma management, little is known about the contribution of more global aspects of the home environment (e.g., family routines/schedule, quality of stimulation provided to child) to asthma management in ethnic minority and urban families. The goals of this study were to: 1) explore ethnic/racial group differences in global and specific dimensions of home environment quality among Latino, non-Latino white (NLW), and African American urban children with asthma; and 2) examine associations between the quality and quantity of support and stimulation within the home environment, as measured by the HOME Inventory, and family asthma management in this sample. Urban, low-income children (N=131) between the ages of 6 and 13 with asthma and a primary caregiver participated in a multi-modal assessment including an in home observation and semi structured interviews to assess aspects of home environment quality and family asthma management practices. While controlling for poverty, no ethnic group differences were found in the global home environment; however, there were significant differences in specific dimensions (e.g. Family Participation in Developmentally Stimulating Experiences, and Aspects of the Physical Environment) of home environment quality. Across the whole sample, home environment quality predicted family asthma management. When examining this association for specific ethnic groups, this finding did not hold for the Latino subsample. The results highlight the need to consider ethnic group differences in non-illness specific aspects of the home environment when addressing families’ asthma management strategies.

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Section: Discussionmentioning

confidence: 99%

Section: Asthma Management In the Family Context: Increased Challengementioning

confidence: 99%

The home environment and family asthma management among ethnically diverse urban youth with asthma.

Sato¹,

Kopel²,

McQuaid³

et al. 2013

Families, Systems, & Health

View full text Add to dashboard Cite

show abstract

“…Trained interviewers rate participants on all domains using a scale from 1 (poor) to 9 (optimal); a total score is the mean across domains. The FAMSS has been used in cross sectional and treatment outcome studies and has been validated with minority samples 60 and in English and Spanish. 61 Internal consistency has been very good in prior studies (Cronbach’s α = .84) 62 and in the current sample (Cronbach’s α = .76).…”

Section: Participant and Methodsmentioning

confidence: 99%

Asthma-related lung function, sleep quality, and sleep duration in urban children

et al. 2017

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Objectives Examine 1) the extent to which changes in objectively measured asthma-related lung function (FEV1 % predicted) within a sleep period are associated with sleep quality and sleep duration during that sleep period, in a group of urban children with persistent asthma; and 2) associations between morning and evening asthma-related lung function and sleep quality and duration on the adjacent night, and 3) whether these associations differ by ethnic group. Design Cross-sectional, multi-method approach. Children completed a clinic assessment of asthma and allergy status and used home-based objective measurements of asthma-related lung function and sleep. Setting Children and their caregivers participated in a clinic assessment at an asthma and allergy clinic and completed additional assessments at home. Participants Two hundred and sixteen African American, Latino, and non-Latino white urban children, ages 7–9 years, and their primary caregivers. Measurements Participants took part in a clinic assessment of asthma and allergy status, completed interview-based questionnaires including a diary to track asthma symptoms and sleep patterns, and used actigraphy and home-based spirometry daily across a 4-week period to assess sleep and lung function. Results and Conclusions Results from analyses using structural equation modeling revealed an association between worsening FEV1 and poor sleep quality in the full sample, as well as better asthma-related lung function at night and more optimal sleep efficiency that night. Ethnic group differences emerged in the association with morning or nighttime lung function measurements and sleep quality. Urban minority children with asthma may be at heightened risk for poorer quality sleep. Timing of lung function worsening may be important when considering when and how to improve both asthma health outcomes and sleep quality within specific groups.

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“…Cada subescala da FAMSS é cotada com o auxílio do manual com critérios detalhados, numa escala de Likert de 1 a 9, que indica a qualidade da gestão adaptativa da asma em cada área (maiores valores correspondem a uma melhor gestão), sendo também calculado um resultado global através da média das escalas. Os estudos de validação da FAMSS têm revelado boas qualidades psicométricas, nomeadamente uma boa consistência interna (com o alfa de Cronbach a variar entre 0.91, 0.84 e 0.87) (Celano, Klinnert, Holsey, & McQuaid, 2011;Klinnert et al, 1997;McQuaid et al, 2005). Esta entrevista foi usada na avaliação inicial e no followup, na medida em que cobre um período temporal de cerca de um ano, não fazendo sentido por isso aplicá-la no final da intervenção.…”

Section: Disabkids-37 -Módulo Genérico Do Questionário De Qualidade Dunclassified

Aceitação e eficácia de um programa de intervenção psicoeducativa para pais de crianças com asma: Estudo exploratório

Silva¹,

Barros²,

Simões³

2016

Análise Psicológica

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Considerando a importância que a educação sobre a asma deve assumir no plano de gestão familiar da doença, e a falta de programas deste tipo em Portugal, construímos uma intervenção psicoeducativa breve para pais de crianças com asma entre os 7 e os 13 anos, visando a aquisição de atitudes mais positivas na gestão da doença. O estudo teve como objetivo avaliar a aceitação, eficácia e a satisfação relativa ao programa intervenção. Completaram a intervenção 10 mães, tendo participado nas 3 sessões de grupo e nos 3 momentos de avaliação (linha de base, final da intervenção e follow-up a 9 meses). Para além da recolha de informação sociodemográfica e clínica, aplicaram-se dois questionários, um de conhecimentos sobre a asma e outro de qualidade de vida da criança (DISABKIDS-37, versões pais e criança). Utilizou-se também uma entrevista sobre a gestão da asma pela família (FAMSS) na avaliação inicial e no follow-up. Os resultados evidenciaram uma melhoria moderada no conhecimento dos pais e nas práticas de gestão da asma, confirmando a utilidade de incluir a intervenção psicoeducativa nos cuidados às crianças com asma.Palavras-chave: Asma, Intervenção psicológica, Gestão da doença, Pais. IntroduçãoA asma é uma doença inflamatória crónica do trato respiratório caracterizada por períodos de aparente acalmia interrompidos por períodos de dificuldades respiratórias severas (Kumar & Gershwin, 2006). É uma das doenças crónicas mais comuns na infância e uma importante causa de utilização dos serviços de urgência pediátricos e de internamento hospitalar (Gaspar, Almeida, & Nunes, 2006), estando a sua prevalência durante a vida da criança a aumentar em quase todos os países, segundo o International Study of Asthma and Allergies in Childhood (Pearce et al., 2007). Os resultados da fase III deste estudo referentes a Portugal apresentam um aumento na percentagem de crianças da faixa etária dos 13-14 anos que referem já ter tido asma alguma vez (com valores a variar entre os 12% e os 16 %) (Pearce et al., 2007).Apesar dos progressos no conhecimento sobre esta doença e no respetivo tratamento, a asma continua a ter um impacto significativo na vida dos pacientes e os níveis de controlo da doença mantêm-se muito abaixo das metas definidas pelas diretrizes internacionais (Rabe et al., 2004). 423A investigação foi parcialmente suportada por uma Bolsa de Doutoramento da Fundação para Ciência e Tecnologia (SFRH/BD/44757/2008) do primeiro autor.A correspondência relativa a este artigo deverá ser enviada para: Cláudia Mendes da Silva,

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Validity of the Family Asthma Management System Scale with an Urban African-American Sample

Abstract: The FAMSS demonstrated relevant associations with asthma management criteria and family functioning for a low-income, African-American sample.

Cited by 39 publications

References 27 publications

The home environment and family asthma management among ethnically diverse urban youth with asthma.

The home environment and family asthma management among ethnically diverse urban youth with asthma.

Asthma-related lung function, sleep quality, and sleep duration in urban children

Aceitação e eficácia de um programa de intervenção psicoeducativa para pais de crianças com asma: Estudo exploratório

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