Waiting for a Liver Transplant: Psychosocial Well-Being, Spirituality, and Need for Counselling

Goetzmann, Lutz; Wagner-Huber, Regula; Klaghofer, Richard; Muellhaupt, Beat; Clavien, Pierre‐Alain; Buddeberg, Claus; Scheuer, Eberhard

doi:10.1016/j.transproceed.2006.08.171

Cited by 32 publications

(28 citation statements)

References 13 publications

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“…While the experience of waiting for a new liver is certainly likely to be stressful, there was no evidence to support that it is significantly more stressful than being diagnosed with chronic liver disease. In addition, it is certainly possible that while the experience is more stressful, the provision of hope through the possibility of liver transplantation counters adverse outcomes in terms of well-being [30]. Depression levels were related to HRQoL, which is in line with previous research in other patient populations [31][32][33].…”

Section: Discussionsupporting

confidence: 84%

Health-related quality of life and psychological correlates in patients listed for liver transplantation

et al. 2007

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Section: Discussionsupporting

confidence: 84%

Health-related quality of life and psychological correlates in patients listed for liver transplantation

et al. 2007

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“…Additionally, losses in the functional capacity of patients may be a factor in the stress and burden of relatives and caregivers. [8][9][10][11][12] The aim of this study was to evaluate the burden, stress, and psychosocial aspects of informal caregivers of patients awaiting liver transplantation.…”

mentioning

confidence: 99%

Patients on the waiting list for liver transplantation: Caregiver burden and stress

et al. 2010

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Over the last few decades, informal caregivers of patients with chronic diseases have received more attention, and there is a growing volume of studies demonstrating high rates of burden, stress, and mental disorders in this group of individuals. The objective of this study was to evaluate the burden, stress, and psychosocial characteristics of informal caregivers of liver transplantation candidates. Participants were assessed by individual evaluations with the following instruments: a semistructured interview, the Caregiver Burden Scale, the Inventá rio de Sintomas de Stress para Adultos de Lipp, and the Beck Depression Inventory. The Mann-Whitney test was used for statistical analysis with a significance level of 0.05. The characteristics of the study group (n ¼ 61) were similar to those of groups in other studies with respect to gender (82% were women), kinship (64% were spouses), and age (the mean age was 47.6 years). The main stressors identified by the participants were as follows: doubts about ways to react in a crisis or in emergency situations (42.6%), mood swings of the patient (29.5%), and care involving food and medications (27.9%). Approximately 25% of the caregivers reported that they felt unprepared to adequately perform their roles. Data analysis indicated a greater burden overall on caregivers when the patient's Model for End-Stage Liver Disease score was greater than or equal to 15 points (P ¼ 0.041). Furthermore, caregivers of patients with alcoholic liver disease showed higher depression (P ¼ 0.034) and overall burden scores (P ¼ 0.031) versus caregivers of patients with liver disease due to other etiologies. In conclusion, the participants showed significantly high levels of burden, stress, and depression. Support measures and caregiver preparation should be implemented by health care providers. A loss of health can be seen as a crisis situation, with effects extending to the relatives of patients and affecting their quality of life. Studies have warned of the high incidence of mental disorders among caregivers of the chronically sick. Anxiety, mood swings, stress, a lack of preparation for coping with the demands of patients, and feelings of anger, fear, guilt, and loneliness are all common complaints among informal caregivers.

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“…Incorrectly diagnosing cirrhotic patients with irreversible renal failure leads to needlessly listing these patients for SLK. On an individual level, this translates to increased time on the transplant waitlist and its associated stress, anxiety, and relative negative quality of life (24)(25)(26). On a societal level, this means that fewer kidneys are available to ESRD patients, who face a 6% annual mortality on the kidney transplant waitlist (27).…”

Section: Discussionmentioning

confidence: 99%

Renal recovery following orthotopic liver transplant after prolonged kidney injury: Perspectives on diagnosing hepatorenal syndrome and determining which patients should undergo simultaneous liver kidney transplantation

Card

Moeckel

Turner

2017

jrenhep

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We present a case of an individual with cirrhosis and renal failure. This case is notable because the patient was found to have hepatorenal syndrome (HRS) superimposed on Immunoglobulin A (IgA) nephropathy. After 8 months of dialysis, the patient had significant renal recovery following orthotopic liver transplant (OLT). Cases such as this are not likely to be rare, as case series have shown that IgA deposits are a common occurrence in patients with cirrhosis, including those who have HRS. While current diagnostic criteria for HRS emphasize the importance of excluding glomerular lesions, we argue that this approach should be reconsidered. More specifically, we feel that the diagnostic approach to HRS should be more inclusive of cases in which patients have simultaneous HRS and glomerular injury. In addition, our case highlights the challenges in determining which patients will benefit most from simultaneous liver-kidney transplants over OLTs alone.

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Waiting for a Liver Transplant: Psychosocial Well-Being, Spirituality, and Need for Counselling

Cited by 32 publications

References 13 publications

Health-related quality of life and psychological correlates in patients listed for liver transplantation

Health-related quality of life and psychological correlates in patients listed for liver transplantation

Patients on the waiting list for liver transplantation: Caregiver burden and stress

Renal recovery following orthotopic liver transplant after prolonged kidney injury: Perspectives on diagnosing hepatorenal syndrome and determining which patients should undergo simultaneous liver kidney transplantation

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