What Is the Future of Family Outcomes and Family-Centered Services?

Abstract

The central role of family support in programs serving young children with disabilities was emphasized in Public Law 99-457. In the ensuing 25 years, much work has been done to describe the principles and practices that characterize effective family support. Less clear is whether and how programs serving infants, toddlers, and preschoolers promote family outcomes. This article describes the components of family-centered practice and summarizes the data in support of the use of such practices. The authors show that early intervention and preschool programs are not held accountable for family outcomes; instead, they are limited only to showing that families are satisfied with services. The authors predict that family outcomes will not be part of any national accountability effort in the near future until research clearly shows that such outcomes ultimately will benefit children, and they suggest several lines of work needed to advance the field toward making an informed policy decision about documenting family benefit.

El Enfoque Centrado en la Familia, en el campo de la discapacidad intelectual ¿Cómo perciben los padres su relación con los profesionales?

“…Los padres de este estudio, de forma similar a otras investigaciones (Bailey et al 2012), se muestran satisfechos globalmente con su relación con los profesionales. Concretamente, un 68% considera que su experiencia general ha sido buena o muy buena.…”

“…Por lo tanto, es difícil establecer conclusiones definitivas acerca de la naturaleza de sus interacciones con los profesionales. A pesar de ello, consideramos que los datos aquí presentados aportan información relevante acerca de las experiencias que, sobre este tipo de interacciones, tienen padres con hijos en edad adulta; etapa con menor investigación por el momento (Bailey, Raspa y Fox, 2012).…”

Developing the Home-based Early Intervention Program: A Case Study

“…In early intervention services, studying with every family individually and planning intervention programs considering family's properties and opinions effect results positively. Primary principle of the family centered approach is composed of focusing family's strengths, respect family's differences and values, letting family to decide and support their authority, communicating with the family in an open and cooperative way and having a flexible approach on supplying services (Bailey, Raspa & Fox, 2012). In the current study, all of these properties are considered during the applications.…”

Benefícios e Nível de Participação na Intervenção Precoce: Perspectivas de Mães de Crianças com Perturbação do Espetro do Autismo

“…As entrevistas tiveram a duração média de sessenta minutos. A análise dos dados foi elaborada tendo por base a técnica de Análise de Conteúdo, com base nos estudos de Bardin (2015). As participantes assinaram o Termo de Consentimento Livre e Esclarecido, obedecendo aos critérios éticos, o anonimato e a confidencialidade das informações.…”