Societal transformation is one of the most topical concepts in sustainability research and policy-making. Used in many ways, it indicates that nonlinear systematic changes are needed in order to fully address global environmental and human development challenges. This paper explores what sustainability transformations mean for lay focus group participants in Cabo Verde, China, Fiji, Sweden, and the USA. Key findings include: (a) Tightly linked to interpersonal relationships, sustainability was seen as going beyond the Sustainable Development Goals to include a sense of belonging; (b) transformations were framed as fundamental changes from today’s society, but most participants stated that transformation pathways need to splice new structures into the old; (c) new technologies are key engines of change. Yet, the most common drivers were awareness, education, and knowledge sharing; and (d) regardless of whether state-centric or decentralized governance was preferred, personal action was seen as essential. The focus groups displayed a shared understanding across the geographical settings; a common realization of profound sustainability predicaments facing societies across the world; and a desire for fundamental change towards a more sustainable way of life.
Background
Individuals with Down syndrome are particularly vulnerable to COVID‐19 because they are recognised as significantly immunocompromised. Yet their voices regarding their lived experiences of pandemic lockdowns have not been sought or heard.
Aim
This study aims to describe the lived experiences of people with Down syndrome during the pandemic lockdowns in Aotearoa New Zealand to add evidence in order to inform systemic advocacy.
Method
A mixed‐methods approach positioned within an inclusive research paradigm was used, in which a group of self‐advocates with Down syndrome co‐designed a structured interview schedule and conducted 40 face‐to‐face interviews. Key themes were identified by using content analysis.
Results
Despite the difficulties associated with lockdowns and participants not receiving their usual supports and having to make significant adjustments, they remained positive, adapted well, and demonstrated a high level of resilience and adaptability.
Conclusions
The findings add to the limited research on the lived experiences of people with Down syndrome during pandemic lockdowns. This research has given them a voice to contribute to policy, government initiatives, and service providers; particularly on issues around support during lockdown and staying connected with others.
Inclusion of indigenous knowledge and voices is paramount if societal transformations relative to climate change are to be fully and appropriately considered. However, much of the research in this area still uses Western-based research methodologies rather than methodologies driven by the local Indigenous communities. Therefore, it is highly likely that large numbers of affected communities remain excluded from global discussions and decisions around climate change solutions and policy. This article presents talanoa, a qualitative culturally centred research methodology used in many Pacific Island countries. As non-Indigenous researchers, we present our exploration of Indigenous research methods and talanoa experiences in a framework that confirms the importance of relationships when conducting research with Indigenous communities. We also propose that talanoa is a crucial component for qualitative research as it can help facilitate knowledge exchange and understanding among Indigenous and non-Indigenous communities.
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