The aim of this study was to identify the ethical and bioethical conflicts involved in adolescent health care, as described in the literature. Systematic review utilizing qualitative analysis, via the technique of thematic analysis, was employed. The databases utilized and the descriptors are presented in Methodology. The area includes adolescent patients, who, according to the World Health Organization, range from the ages of 10 to almost 20 and, under the Statute of the Child and Adolescent, from 10 to 18 years of age. Thus the study involves patients with such broad age ranges and with particularities derived from being no longer a child but not yet an adult. This fact requires different medical specialists and health professionals in caring for these patients, as well as knowledge of ethical, bioethical and legal aspects involved in health care. Keywords: Personal autonomy. Adolescent health. Ethics. Bioethics. ResumoDilemas éticos e bioéticos na atenção à saúde do adolescente Objetivou-se, neste trabalho, identificar os conflitos éticos e bioéticos envolvidos na atenção à saúde de pacientes adolescentes, que são descritos na literatura. Trata-se de revisão sistemática que empregou a análise qualitativa, por meio da técnica de análise temática. As bases de dados utilizadas e os descritores são apresentados na metodologia. Essa temática abrange pacientes adolescentes, considerados dentro da faixa dos 10 aos 20 anos incompletos, segundo a Organização Mundial da Saúde, e dos 12 aos 18 anos, de acordo com o Estatuto da Criança e do Adolescente. Assim, o estudo envolve pacientes com intervalos de idade bastante amplos e com particularidades decorrentes da fase de transição entre não ser mais criança e ainda não ter atingido a idade adulta. Tais especificidades exigem não apenas diferentes especialidades médicas e das demais áreas da saúde, mas também o conhecimento dos aspectos éticos, bioéticos e legais envolvidos na atenção à saúde desses pacientes. Palavras-chave: Autonomia pessoal. Saúde do adolescente. Ética. Bioética. ResumenDilemas éticos y bioéticos en la atención de la salud del adolescente Este trabajo tuvo como objetivo identificar los conflictos éticos y bioéticos descriptos en la literatura, implicados en la atención de la salud de pacientes adolescentes. Se trata de una revisión sistemática que utilizó el análisis cualitativo, por medio de la técnica de análisis de la temática. Las bases de datos empleadas y los descriptores son presentados en la metodología. Esta temática incluye pacientes adolescentes, los cuales según la Organización Mundial de la Salud abarca las edades de 10 años a 20 años incompletos y, según el Estatuto del Niño y del Adolescente, de los 12 a los 18 años. Así, el estudio implica pacientes con intervalos de edad amplios y con particularidades resultantes de la fase de transición entre no ser más un niño, ni tampoco ser un adulto. Este hecho exige diferentes especialidades médicas y de profesionales de la salud en el cuidado de estos pacientes, así como el conocimiento ...

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Background: Health-related quality of life is frequently used as an outcome measure that improves the quality of care. The SF-36 and RAND-36 were derived from the Medical Outcomes Study. Objective The present study aimed to validate the RAND-36 in Brazil, in healthy individuals and patients with liver disease. Methods: Confirmatory factor analysis (CFA) was conducted by using JASP Software. The parameters of the items were estimated using the Robust Diagonally Weighted Least Squares (RDWLS) approach. Comparative fit index (CFI), Goodness-of-fit index (GFI), Tucker-Lewis Index (TLI) and the root mean square error of approximation (RMSEA) were evaluated. Internal consistency was measured using the Composite reliability index. Convergent validity between RAND-36 domains and Work Ability Index (WAI) was conducted. Results: This validation study included 763 individuals, 400 (52.4%) with chronic liver disease. The most prevalent liver diseases were hepatitis C (13.9%), alcoholic liver disease (11.8%), and steatosis (12.1%). The measurement model tested using the CFA obtained the following adjustment indicators: X2 (df): 599.65 (498); CFI: 0.998; GFI: 0.998; TLI: 0.998; RMSEA: 0.016 (90%CI: 0.011-.021). Convergent validity of RAND-36 and total WAI ranged from medium to large correlation. Conclusion: The RAND-36 is effective in measuring the perception of health-related quality of life in individuals with and without chronic liver disease. The results of our study support the developer’s claims for the reliability of the RAND-36 version 1 as a measure of health-related quality of life. The evidence for the construct validity of the RAND-36 was substantial.

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