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Thalassemia is one of the most common autosomal recessive hereditary blood disorders worldwide, especially in developing countries, including Bangladesh. Thus, this study aimed to determine HRQoL and its determinants of thalassemia patients (TP) in Bangladesh. A cross-sectional survey was performed on 356 randomly selected thalassemia patients. Participants were invited to face-to-face interviews. Descriptive statistics (frequencies and percentages), independent t-test, ANOVA, and multivariate (linear and logistic regression) analysis was performed to analyze the data. Our demographic data showed that among 356 patients, 54% and 46% were male and female, respectively, with an average age of 19.75 (SD = 8.02) years. Most were transfusion-dependent (91%), 26% had comorbidities, and 52% were from low-income families. In the case of HRQoL, male patients showed significantly higher scores of bodily pains and physical health summaries than female patients. Lower income, high blood transfusion status, disease severity, comorbidities, and medical expenses (p < 0.05; CI 95%) are significantly associated with lower SF-36 scores. This study found an association between lower income, blood transfusion, disease severity, comorbidities, as well as medical expenses, and the deterioration of HRQoL among TP. Male patients experienced poorer HRQoL than females. National action plans are required to guarantee the holistic welfare of thalassemia patients.

The increased social media attention to scholarly articles has resulted in efforts to create platforms & services to track and measure the social media transactions around scholarly articles in different social platforms (such as Twitter, Blog, Facebook) and academic social networks (such as Mendeley, Academia and ResearchGate). Altmetric.com and PlumX are two popular aggregators that track social media activity around scholarly articles from a variety of social platforms and provide the coverage and transaction data to researchers for various purposes. However, some previous studies have shown that the social media data captured by the two aggregators have differences in terms of coverage and magnitude of mentions. This paper aims to revisit the question by doing a large-scale analysis of social media mentions of a data sample of 1,785,149 publication records (drawn from multiple disciplines, demographies, publishers). Results obtained show that PlumX tracks more wide sources and more articles as compared to Altmetric.com. However, the coverage and average mentions of the two aggregators vary across different social media platforms, with Altmetric.com recording higher mentions in Twitter and Blog, and PlumX recording higher mentions in Facebook and Mendeley, for the same set of articles. The coverage and average mentions captured by the two aggregators across different document types, disciplines and publishers is also analyzed.

Background One of the most common autosomal recessive hereditary blood disorders in the world, especially in developing countries like Bangladesh. Patients suffering from this disease face physical, emotional, and social problems that lessen their health-related quality of life (HRQoL). Thus, this study aimed to determine HRQoL and its determinants of Thalassemia patients (TP) in Bangladesh using the Short Form-36 (SF-36) questionnaire. Methods A cross-sectional survey was done on 356 randomly selected TP from the Bangladesh Thalassemia Foundation. Participants were invited to face-to-face interviews. Descriptive statistics (frequencies and % ages), independent t-test, ANOVA, and Multivariate (linear and logistic regression) analysis were performed on the collected data. Results Our demographic data showed that among 356 patients, 54% and 46% were male and female, respectively, with an average age of 17 years. The majority were transfusion-dependent (91 %), with a quarter of the patients (26%) having comorbidities, and half of the patients (52%) were from low-income families. Therefore, the medical expenses per annum for each patient of 60,000 BDT were a real burden for those patients. In the case of HRQoL, male patients showed significantly higher scores of bodily pains and physical health summaries than female patients. Lower income, high blood transfusion status, disease severity, comorbidities, and medical expenses (p < 0.05; CI 95%) are significantly associated with lower SF-36 scores. Conclusions This study found an association between lower income, blood transfusion, disease severity, comorbidities, and medical expenses and the deterioration of HRQoL among TP. Male patients experienced poorer HRQoL compared to their female counterparts. National action plans are required to guarantee the holistic welfare of thalassemia patients.

Social media platforms have now emerged as an important medium for wider dissemination of research articles; with authors, readers and publishers creating different kinds of social media activity about the article. Some research studies have even shown that articles that get more social media attention may get higher visibility and citations. These factors are now persuading journal publishers to integrate social media plugins in their webpages to facilitate sharing and dissemination of articles in social media platforms. Many past studies have analyzed several factors (like journal impact factor, open access, collaboration etc.) that may impact social media attention of scholarly articles. However, there are no studies to analyze whether the presence of social media plugin in a journal could result in higher social media attention of articles published in the journal. This paper aims to bridge this gap in knowledge by analyzing a sufficiently large-sized sample of 99,749 articles from 100 different journals. Results obtained show that journals that have social media plugins integrated in their webpages get significantly higher social media mentions and shares for their articles as compared to journals that do not provide such plugins. Authors and readers visiting journal webpages appear to be a major contributor to social media activity around articles published in such journals. The results suggest that publishing houses should actively provide social media plugin integration in their journal webpages to increase social media visibility (altmetric impact) of their articles.