We present a study of subjective life quality in young people with disabilities compared with their healthy peers. The study sample comprised 62 women aged 14 to 18 years. The experimental study group consisted of 30 students of grades VIII-XI of Secondary School of home-based learning № 1673 "Support". The control group included 32 student of grades VIII-XI of School № 1222 with in-depth study of the German language. The methods used were: Medical Outcomes Study 36 Item Short Form Health Survey (SF-36), M. Kuhn test "Who am I" (M. Kuhn, T. McPartland; modification by T.V. Rumjantseva), Method and diagnosis of health, activity and mood, projective technique "Picture of the actual self" and "Picture of the desired self" with questions. We formulated conclusions about the features of the subjective assessment of the quality of life in young people with disabilities compared with their healthy peers.
The article is an overview of foreign studies on the socialization of children with cancer in medical history. Studies show that the presence of cancer diagnosis is the strongest stress factor for the child, as well as his long-term hospitalization, painful medical procedures, asthenization, emotional deprivation, separation from the usual lifestyle and close relatives. All this negatively affects the psychological state of the child and his reintegration into society after a long-term treatment. Particular attention is paid to publications about the difficulties a child faces when returning to society. They show that children with cancer (cured or in the state of remission) have difficulties in social interaction, learning problems, cognitive difficulties, which can lead to emotional disorders. The studies aimed at assessing the family situation of children with cancer have been analyzed. The article also describes potential strategies aimed at preventing and correcting social maladjustment of children as well as at psychological support of children with cancer and their families.
Professor of the Department of Special Psychology and Rehabilitation Tatiana Alexandrovna Basilova celebrates the anniversary. Tatyana Alexandrovna was at the origins of the Faculty of Clinical and Special Psychology, more than 15 years she was the head of the Department of Special Psychology, she shared her professional experience with students and colleagues, under her leadership, dozens of scientific works were defended. Tatiana Alexandrovna is a highly professional specialist with extensive experience of work with children with multiple disabilities. We wish Tatiana Alexandrovna good health, happiness, inexhaustible energy, creative success and scientific discoveries, sincere support from students, undergraduates and colleagues!
The article is devoted to the study of the features of the emotional and personal domains of children and adolescents with osteogenesis imperfecta. The effectiveness of the use of a socio-psychological rehabilitation program in the several following areas was also studies. Reducing the severity of aggressiveness and anxiety, developing of a sociability, changing of a self-esteem and the attitude to one's disease, the development of new significant children and adolescents needs with osteogenesis imperfecta. The study involved 58 children and adolescents aged 9–19 years (13.2±2.39 years) with osteogenesis imperfecta, including 36 girls and 22 boys. The control group consisted of 25 children and adolescents aged 9–19 years (13.8±3.12 years) without chronic somatic diseases, including 13 girls and 12 boys. The study was based on the following methods: M. Kuhn’s test “Who am I” (modified by T.V. Rumyantseva, 2006), the “Non-existent animal” method (M.Z. Dukarevich, 1990), an abbreviated version of the “Incomplete sentences” method (V.E. Kagan and I.K. Shats, 2003) and the technique of "Tsvetik-Semitsvetik" (I.M. Vitkovskaya, 2010). The features of the emotional and personal domains of children and adolescents with osteogenesis imperfecta were revealed in comparison with their healthy peers, consisting in a negative assessment of their physical self, the predominance of fear of aggression and a reduced subjective significance of their moral needs. It was noted that the indicator of an adequate idea of their disease increases, negative emotional experiences regarding their disease intensify, and the motivation for recovery increases. This phenomenon interacts with age in children and adolescents with imperfect osteogenesis. The study also partially proved the effectiveness of the proposed rehabilitation program, as a result of which children and adolescents with osteogenesis imperfecta showed positive dynamics in expanding the main parameters of identity, increased self-esteem of their physical self and sociability, and also decreased indicators of verbal aggression and anxiety. The priority of biological and communicative needs has decreased, the needs for personal changes and material needs have come to the fore. As a result of the rehabilitation program in children and adolescents with imperfect osteogenesis, self-reported indicators of fixation on pain decreased; the number of children openly showing emotional experiences regarding the disease has increased.
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