Barriers to Seeking Cancer Information Among Spanish-Speaking Cancer Survivors

Davis, Starkey D.; Díaz-Méndez, Marynieves; Garcia, Maria Talosig

doi:10.1080/08858190902873053

Cited by 15 publications

(11 citation statements)

References 26 publications

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“…Prior research has emphasized the importance of leveraging culture and language differences to incorporate into verbal and written cancer information given to patients [44,45]. In addition to culture and language, geography and social environment impact a woman's non-compliance with follow-up of an abnormal pap test [46].…”

Section: Discussionmentioning

confidence: 99%

Using the word ‘cancer’ in communication about an abnormal Pap test: Finding common ground with patient–provider communication

Simon

Cofta-Woerpel

Randhawa³

et al. 2010

Patient Education and Counseling

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Objectives-To investigate provider and patient views about communication regarding cervical cancer screening follow-up.Methods-Using qualitative analysis, we interviewed 20 providers and 10 patients from two urban clinics that serve low-income African American and Hispanic women. Semi-structured interviews and focus groups assessed familiarity with National Cancer Institute's Cancer Information Service (CIS) and reactions to a letter asking women with abnormal Pap test to telephone CIS. The letter suggested questions to ask prior to receiving follow-up.Results-No patient or provider was familiar with CIS. Providers but not patients expressed discomfort with use of the word `cancer' in the letter and in CIS's name. Providers feared that reference to cancer would provoke fatalism and impede timely follow-up, whereas patients felt information about cancer risk was needed to prompt timely follow-up. Information providers found necessary to convey in order to accurately explain abnormal Pap tests surpassed patients' literacy levels.Conclusion-Qualitative data suggest important gaps in perspective between providers and patients. There is a need to bridge the gap and overcome communication challenges to promote timely medical follow-up and have better health outcomes.Practice Implications-Implications and strategies for improving patient-provider education and communication about abnormal pap test are discussed.

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Section: Discussionmentioning

confidence: 99%

Using the word ‘cancer’ in communication about an abnormal Pap test: Finding common ground with patient–provider communication

Simon

Cofta-Woerpel

Randhawa³

et al. 2010

Patient Education and Counseling

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“…This was consistent with previous studies using NHIS data. The disparity seen in Hispanics is likely multi-factorial to include as lower socioeconomic status, lower education, lower acculturation, cultural and language barriers in seeking and obtaining cancer information, and less access to healthcare services87-93, 74. It may also be difficult to accurately assess this patient population for cancer screening, as they are more likely to respond to screening questions or surveys in a socially desirable manner and may actually over-report94,95.…”

Section: Colorectal Screening Among Different Minority Groupsmentioning

confidence: 99%

Colorectal Cancer Screening in an Equal Access Healthcare System

DeBarros¹,

Steele²

2013

J. Cancer

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Introduction: The military health system (MHS) a unique setting to analyze implementation programs as well as outcomes for colorectal cancer (CRC). Here we look at the efficacy of different CRC screening methods, attributes and results within the MHS, and current barriers to increase compliance.Materials and Methods: A literature search was conducted utilizing PubMed and the Cochrane library. Key-word combinations included colorectal cancer screening, racial disparity, risk factors, colorectal cancer, screening modalities, and randomized control trials. Directed searches were also performed of embedded references.Results: Despite screening guidelines from several national organizations, extensive barriers to widespread screening remain, especially for minority populations. These barriers are diverse, ranging from education and access problems to personal beliefs. Screening rates in MHS have been reported to be generally higher at 71% compared to national averages of 50-65%.Conclusion: CRC screening can be highly effective at improving detection of both pre-malignant and early cancers. Improved patient education and directed efforts are needed to improve CRC screening both nationally and within the MHS.

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“…Several studies have indicated that non-Hispanic consumers use online learning resources more than English-speaking Hispanics and that Spanish-speaking Hispanics use the Internet infrequently (Davis, Diaz-Mendez, & Garcia, 2009;Vanderpool et al, 2009). Davis et al (2009) found that low use of the Internet occurred in a sample of 40 Spanish-speaking cancer survivors because they feared "feeling bad" as a result of seeking information, much of it in English. Although a wealth of information on cancer treatment and prevention is available online, few Web sites provide such information in Spanish.…”

Section: Discussionmentioning

confidence: 99%

“…With a proliferation of patient-centered Web sites, providers may need to help caregivers and families evaluate sites for valid information to meet their learning needs (Alexander, 2002). Several studies have indicated that non-Hispanic consumers use online learning resources more than English-speaking Hispanics and that Spanish-speaking Hispanics use the Internet infrequently (Davis, Diaz-Mendez, & Garcia, 2009;Vanderpool et al, 2009). Davis et al (2009) found that low use of the Internet occurred in a sample of 40 Spanish-speaking cancer survivors because they feared "feeling bad" as a result of seeking information, much of it in English.…”

Section: Discussionmentioning

confidence: 99%

Managing Pleural Effusions

Walker¹,

Bryden²

2010

Clinical Journal of Oncology Nursing

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Cancer caregivers in Mexican American families experience role-related challenges influenced by limited healthcare literacy. The lack of functional health literacy becomes complex when Mexican Americans have limited English proficiency (LEP) and cultural beliefs that contrast with those of the American healthcare system. Three sequential studies focused on assessing the experience of Mexican American, female cancer caregivers, including their role learning needs; evaluating available community learning materials; and identifying healthcare provider perceptions of caregiver learning needs. Study findings provide direction to improve the process and content of teaching to caregivers with LEP and other caregivers facing the crisis of cancer. Practice recommendations focus on development of targeted learning materials appropriate to caregiver-identified learning needs, language, and education level. Priority learning needs include strategies to meet patient needs for home medication administration, nutrition, and psychological support. Caregiver-preferred formats for learning include videotapes in a family-assisted setting and oral exchanges with other caregivers and care providers. Bilingual clinic personnel who partner with Mexican American family caregivers to address their literacy issues support positive health outcomes in this vulnerable population. Healthcare Literacy:Multiple Perspectives Grounded in the Experience of Mexican American Caregivers At a GlanceF Mexican American family caregivers experience role-related challenges influenced by limited health literacy and English proficiency, both of which block the understanding necessary to deliver high-quality care to their family members with cancer.F Priority learning needs of Mexican American family cancer caregivers include ways to meet patient medication, nutrition, and psychological needs to support positive patient and caregiver outcomes during cancer treatment.F Limited cancer information in formats accessible for Mexican American caregiver learning offers an opportunity for healthcare professionals, including nurses, to develop targeted materials and interventions that optimally meet the learning needs of Mexican American cancer caregivers.

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Barriers to Seeking Cancer Information Among Spanish-Speaking Cancer Survivors

Abstract: Beliefs and attitudes about cancer must be taken into account when developing culturally competent education programs for Spanish speakers.

Cited by 15 publications

References 26 publications

Using the word ‘cancer’ in communication about an abnormal Pap test: Finding common ground with patient–provider communication

Using the word ‘cancer’ in communication about an abnormal Pap test: Finding common ground with patient–provider communication

Colorectal Cancer Screening in an Equal Access Healthcare System

Managing Pleural Effusions

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