Healthcare Professionals’ Knowledge of Family Psychosocial Problems in Pediatric Cancer

Barrera, Maru; Rokeach, Alan; Yogalingam, Priyanga; Hancock, Kelly; Johnston, Donna L.; Cataudella, Danielle; Cassidy, Marilyn; Punnett, Angela; Shama, Wendy

doi:10.1097/ncc.0000000000000321

Cited by 8 publications

(17 citation statements)

References 35 publications

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“…The scope of medical care for pediatric oncology should extend beyond the control of cancer to the psychosocial care of the child and siblings' family [50]. Standard guidelines, established since the 1990s [7,48,49], are rarely implemented as the standard of care.…”

Section: Discussionmentioning

confidence: 99%

“…Currently, there is no standardized tool designed for healthcare professionals (HCPs) to screen for psychosocial needs in pediatric cancer [50]. Available comprehensive screening tools are listed in Table 4.…”

Section: Interventions/supportmentioning

confidence: 99%

“…Psychosocial Care Checklist (PCCL) is a tool developed to address this gap [51]. The results indicated that oncologists and nurses do not seem to have the same awareness of psychosocial problems in the family compared to the social workers [50].…”

Section: Interventions/supportmentioning

confidence: 99%

“…Health-related quality of life (HRQL) Multidimensional construct that encompasses the physical, psychological, and social domains of functioning [71] Psychosocial Care Checklist (PCCL) Instrument developed to assist HCPs to identify psychosocial issues for a child with cancer and his/her family [50] Distress thermometer Assesses general distress using a thermometer-like scale varying from 0 to 10 [72] Psychosocial assessment tool (PAT) and PAT 2.0 Family-focused instrument designed to be completed by a parent and screens for psychosocial risk factors associated with childhood cancer [73,74] Table 4. Comprehensive screening tools for siblings of children with cancer.…”

Section: Screening Tools Function Referencesmentioning

confidence: 99%

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The Forgotten Children

Kuo¹,

Kent²

2017

Pediatric Cancer Survivors

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The "forgotten children" of pediatric cancer are the siblings. There is a dearth of literature published on the effects of cancer on the siblings' psychosocial state. Despite significant improvements made in the survival of pediatric cancer patients, the psychosocial health of the siblings remains the same. The siblings' need for support and understanding continue to go unnoticed. The aim of this chapter is to shed light on the roles siblings play in the pediatric cancer trajectory, as well as to recognize the emotional and psychological toll they endure through the experience of diagnosis, treatment, survival, and bereavement as the "forgotten children."

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Section: Discussionmentioning

confidence: 99%

Section: Interventions/supportmentioning

confidence: 99%

Section: Interventions/supportmentioning

confidence: 99%

Section: Screening Tools Function Referencesmentioning

confidence: 99%

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The Forgotten Children

Kuo¹,

Kent²

2017

Pediatric Cancer Survivors

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“…Although the guidelines use evidence for disease diagnosis and treatment, due to the individual patient factors and tumor stage differences, cancer treatment decisions by patients still lead to uncertainty [14]. Many studies were conducted to understand healthcare professionals' knowledge [15], patients' and family caregivers' knowledge and beliefs [16] [17] [18] [19] Measuring knowledge is very important. If we want to manage something, we have to be able to measure it, it also helpful for the prediction of future performance of individuals [13].…”

mentioning

confidence: 99%

Development and Validation of a Tool to Assess Hepatocellular Carcinoma Knowledge among Hepatocellular Carcinoma Patients in Taiwan

Liao¹,

Wang²,

Yang³

2020

OJN

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Background: Hepatocellular carcinoma (HCC) is a high incidence and high mortality disease. The choice of cancer treatment is extremely important and involves a high-risk, complex and difficult decision-making process. Although the guidelines use evidence for disease treatment, due to the individual patient factors and tumor stage differences, cancer treatment decisions by patients still lead to uncertainty. Objective: When people lack information or skills, they may make decisions that are not optimal. Clinically, we use educational programs to improve patient knowledge but there's no relevant knowledge scale that can be used as an assessment tool. Therefore, it is necessary to develop a convenient and usable knowledge scale. Methods: Based on research purposes, literature review and what physicians believe patients need to know about liver cancer, we built a liver cancer knowledge scale. Results: The total number of participants is 102, of which 66 are male and 36 are female. There is satisfactory internal consistency reliability 0.745, test-retest reliability 1.0 and construct validity were noted CVI 0.96. There was adequate overall evidence for convergent (p = 0.001) and discriminatory validity (p < 0.005). Conclusions: This knowledge scale can provide hepatocellular carcinoma before and after treatment evaluation whether patients have sufficient knowledge.

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