Pain and Symptom Control in Terminally Ill Children

Galloway, Karen S.; Yaster, Myron

doi:10.1016/s0031-3955(05)70234-0

Cited by 52 publications

(23 citation statements)

References 102 publications

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“…10,11 Pain management may entail various behavioral, religious, medication (prescription and alternative), and surgical options. One of the medical care goals is to explore the psychosocial factors involved in the pain experience and attempt to address misconceptions, modify or change unhelpful coping strategies and enforce positive ones.…”

Section: Spirituality Religion and Painmentioning

confidence: 99%

Spirituality and religion in pain and pain management

Dedeli

Kaptan

2013

Health Psych Res

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Pain relief is a management problem for many patients, their families, and the medical professionals caring for them. Although everyone experiences pain to some degree, responses to it vary from one person to another. Recognizing and specifying someone else's pain is clinically a well know challenge. Research on the biology and neurobiology of pain has given us a relationship between spirituality and pain. There is growing recognition that persistent pain is a complex and multidimensional experience stemming from the interrelations among biological, psychological, social, and spiritual factors. Patients with pain use a number of cognitive and behavioral strategies to cope with their pain, including religious/spiritual factors, such as prayers, and seeking spiritual support to manage their pain. This article provides an overview of the complex phenomenon of pain, with a focus on spiritual and religious issues in pain management.

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Section: Spirituality Religion and Painmentioning

confidence: 99%

Spirituality and religion in pain and pain management

Dedeli

Kaptan

2013

Health Psych Res

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“…15,16,17 Nausea and vomiting are less common though sometimes more difficult to manage than pain. 4,16,18,19 Kohler 20 found that 50% of children experienced constipation and anorexia. Fatigue and sleep loss are also frequent problems among this pediatric cohort 4,16,21,22 as well as dyspnea, breathlessness, 5 nosebleeds, seizures and diarrhea.…”

Section: Background Literaturementioning

confidence: 99%

Symptoms in Children With Advanced Cancer

et al. 2012

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Background Systematic studies on the specific symptom experience in children with advanced cancer are limited. Objective To examine common symptoms and to explore commonly occurring symptoms over time. Methods A prospective and longitudinal study design was used. Data were collected at 10 data points from 60 children over a 5-month period. Children ranged from 6 to 17 years old, spoke English or Spanish, were diagnosed with advanced cancer, and were receiving health care in one of four Southern California hospitals. Nurses documentation of symptoms were examined. Results Sample: Children 52% 6–12 years and 48% 13–17 years; 42% female, 58% male; 55% Latino and 30% Caucasian. Pain, nausea, drowsiness and energy loss were reported by children in over 50% of the interviews. Children’s and nurses’ reports of symptoms were similar except children reported significantly more frequency and intensity of pain. Conclusions Children with advanced cancer were able to report and describe their symptoms. There were few differences by gender, age, and ethnicity. Implications for Practice It is important that children’s symptoms are clearly communicated to nurses and these study findings may be used to anticipate and manage the symptoms experienced by children with advanced cancer.

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“…Many parents report that watching their children gasp at the end of life is among the worst experiences of their children's illness. 30 Many parents can graphically describe the horror they felt when their child appeared to be struggling to breathe at the end of life; they perceived the child to be distressed. 31 Gasping, or autoresuscitation, is a well-studied physiologic alevent.…”

Section: Agonal Respiration and Sufferingmentioning

confidence: 99%

The agony of agonal respiration: is the last gasp necessary?

Perkin

2002

J Med Ethics

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Gasping respiration in the dying patient is the last respiratory pattern prior to terminal apnoea. The duration of the gasping respiration phase varies; it may be as brief as one or two breaths to a prolonged period of gasping lasting minutes or even hours. Gasping respiration is very abnormal, easy to recognise and distinguish from other respiratory patterns and, in the dying patient who has elected to not be resuscitated, will always result in terminal apnoea.Gasping respiration is also referred to as agonal respiration and the name is appropriate because the gasping breaths appear uncomfortable and raise concern that the patient is suffering and in agony. Enough uncertainty exists about the influence of gasping respiration on patient wellbeing, that it is appropriate to assume that the gasping breaths are burdensome to patients. Therefore, gasping respiration at the end of life should be treated.We propose that there is an ethical basis, in rare circumstances, for the use of neuromuscular blockade to suppress prolonged episodes of agonal respiration in the well-sedated patient in order to allow a peaceful and comfortable death.

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Pain and Symptom Control in Terminally Ill Children

Cited by 52 publications

References 102 publications

Spirituality and religion in pain and pain management

Spirituality and religion in pain and pain management

Symptoms in Children With Advanced Cancer

The agony of agonal respiration: is the last gasp necessary?

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