Psychological Profile of Children Who Require Repetitive Surgical Procedures for Early Onset Scoliosis: Is a Poorer Quality of Life the Cost of a Straighter Spine?

Aslan, Cihan; Olgun, Z. Deniz; Ertaş, Erkan Sabri; Ozusta, Seniz; Demirkıran, Gökhan; Ünal, Fatih; Yazıcı, Muharrem

doi:10.1016/j.jspd.2017.03.007

Cited by 35 publications

(32 citation statements)

References 22 publications

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“…Several of the respondents noted, the avoidance of multiple procedures under general anesthesia to be the main benefi t of the MCGR treatment method. Adverse effects which may be attributed to repeated surgeries requiring general anesthesia on psychosocial and cognitive function and general development have been reported [14][15][16]. Some EOS patients suffer from cognitive impairment rooted in their basic etiologies and in comorbidities; some also undergo multiple procedures under general anesthesia for non-spine related pathologies.…”

Section: Discussionmentioning

confidence: 99%

High global satisfaction in magnetically controlled elongations in 29 early-onset scoliosis patients versus primary spinal fusion in 20 adolescent idiopathic scoliosis patients

Skov¹,

Bünger²,

Rölfing³

et al. 2019

Open J Orthop Rheumatol

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Background and purpose: Early-Onset Scoliosis (EOS) treatment aim to improve natural history and the child's quality of life. Magnetically Controlled Growing-Rods (MCGRs) represented a major evolution in distraction-based management of EOS by eliminating the surgical elongations. The technique can be used until cessation of growth and consequently it overlaps with primary Permanent Deformity Surgery (PDS). Patient reported outcomes of growth instrumentation compared to PDS is an interesting but uninvestigated subject.Our aim was to investigate the psychological burden, physical burden and global satisfaction in MCGR lengthening procedures in EOS patients and their parents, compared to PDS in adolescent idiopathic scoliosis patients. Patients and methods:A single-center cross-sectional cohort study: 29 MCGR-treated EOS patients, mean age 11(range, 6-14) years, compared to a PDS control group of 20 AIS patients age 16(12-20) years. Follow up in the MCGR group was 25(SD 14) months and 19(SD 12) months in the PDS group. The parents responded to a 9-item Satisfaction Questionnaire with a 0-10 Likert scale [0 none, 10 maximum]. Results:The median (range) physical strain was 0(0-7) for MCGR vs. 7(5-9) in PDS, the psychological strain was 0(0-7) vs. 7(0-10), the procedure related back pain was 0(0-5) vs. 8(0-10), the pain intensity between distractions/follow-up 0(0-8) vs. 2(0-8), the parental concern was 0(0-7) vs. 9(2-10). Overall satisfaction of the treatment concept was 10(6-10) vs. 9(2-10). Interpretation:Overall satisfaction was uniformly high in both groups. Both the physical and psychological strain and pain in conjunction with MCGR lengthening procedures were low in comparison with primary deformity surgery. Level of evidence:Level IV, cross-sectional cohort study. ORCiD: https://orcid.org/0000-0002-2089-7113 https://www.peertechz.com 006 https://www.peertechz.com/journals/open-journal-of-orthopedics-and-rheumatology Citation: Skov ST, Bünger C, Rölfing JD, Hansen ES, Høy K, et al. (2019) High global satisfaction in magnetically controlled elongations in 29 early-onset scoliosis patients versus primary spinal fusion in 20 adolescent idiopathic scoliosis patients. Open J Orthop Rheumatol 4(1): 005-009.

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Section: Discussionmentioning

confidence: 99%

High global satisfaction in magnetically controlled elongations in 29 early-onset scoliosis patients versus primary spinal fusion in 20 adolescent idiopathic scoliosis patients

Skov¹,

Bünger²,

Rölfing³

et al. 2019

Open J Orthop Rheumatol

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“…Медицинские аспекты AIS (эпидемиологические и медико-диагностические вопросы) отражены в работах A.S. Deepak et al [3] и P.-H. Heitz et al [17]. В то же время тема сколиоза (в более широком аспекте -по отношению к различным формам сколиоза) представлена в работах С. Aslan et al [33], F. Jagger et al [34], N. Kontodimopoulosab et al [18]: использование оперативного вмешательства; психологические затруднения и психическая дезадаптация больных сколиозом; качество жизни; особенности психотравмирующей ситуации болезни и факторы, определяющие психосоциальную адаптацию пациента.…”

Section: методология анализа исследований по сколиозуunclassified

“…Особенно пагубно сказывается заболевание на девочках, вызывая у них переживания, связанные с косметическим дефектом, что неизбежно ведет к снижению совладающих ресурсов (инфантильности, появлению ощущения беспомощности, выработке сенситивного и избегающего типа реагирования на болезнь). Ряд работ посвящен проблемам, связанным с хирургическим вмешательством и способам преодоления предоперационной тревоги [31,33].…”

Section: анализ публикаций по идиопатическому сколиозуunclassified

“…Депрессия наблюдалась у 23,8 % пациентов, генерализованное тревожное расстройство -у 42,8 %. Пациенты в группе исследования чаще, чем в популяции, имели психиатрический диагноз [33].…”

Section: анализ публикаций по идиопатическому сколиозуunclassified

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Psychological aspects of treatment and rehabilitation of patients with adolescent idiopathic scoliosis: research analysis

Pyatakova

Викторовна²,

Okoneshnikova

et al. 2019

Pediatr Traum Orthop Reconstr Surg

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Idiopathic scoliosis is a common orthopedic disease of unknown etiology in childhood that limits the patient’s activity for a lifetime. Treatment of idiopathic scoliosis includes both conservative and surgical methods and requires psychological consideration, which is important for the rehabilitation of patient with chronic disease. Systematic research on the psychological aspects of the treatment and rehabilitation of patients with idiopathic scoliosis in the form of analysis allows us to evaluate the medical and psychological approaches to the problem and to identify the factors contributing to the successful adaptation of the patient to chronic disease situation. Methodology. We selected the articles related to the psychological aspects of scoliosis and its treatment between 2017 and 2018. The primary selection included 16 publications, of which 2 were survey studies. Earlier foreign and domestic publications were also included in the analysis in order to compare the changes in treatment and rehabilitation approaches. Literature analysis. Idiopathic scoliosis was considered as a risk factor for psychological discomfort in the forms of stress, negative emotions, anxiety, distortion of the image of “I,” reduced self-esteem, and communication problems. These increase the risk of mental disorders, such as depression, suicidal tendencies, and psychological disadaptation. Discussion. Analysis allows us to highlight the most important topics in the studies of adolescent idiopathic scoliosis in recent years: topic on mental health/ill health in adolescent idiopathic scoliosis (AIS), theme of the psychological component of pain, topic on clinical psychological and social psychological factors that determine the course of the disease of the patients with AIS, quality of life of a child or adolescent with AIS, issues of psychological resources for adaptation to a chronic disease, topic on parents’ perception of their child’s illness, and topic on the psychological accompaniment of patients suffering from AIS. Conclusions. A modern approach to the study of idiopathic scoliosis suggests a point of view from a biopsychosocial model of the disease; therefore, it is necessary to consider various factors affecting the patient’s quality of life, including the psychological component of the disease. Psychological support of the treatment should focus on the formation of the patient’s active position in relation to his or her own life and active coping strategies with chronic disease.

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“…Оказалось, что хирургические вмешательства снижают качество жизни пациентов. С возрастом у пациентов, перенесших множественные хирургические вмешательства, появляются тревожные и депрессивные симптомы клинического уровня [10]. Возможности психологической адаптации к жизни подростка после выписки из стационара во многом определяются этими эмоциональными проявлениями.…”

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The Dynamics of Experiences at the Stages of Surgical Treatment in Adolescents With Idiopathic Scoliosis

Pyatakova¹,

Lebedeva²,

Vissarionov³

2020

СПНО (MPSE)

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2 ФГБОУ высшего образования «Санкт-Петербургский государственный университет», Санкт-Петербург В исследовании проведено изучение динамики переживаний у подростков с идиопатическим сколиозом на этапах хирургического лечения. После проведенного вмешательства, на этапах восстановительного лечения происходит постепенное нарастание признаков посттравматического стресса, снижение реактивной тревожности в послеоперационном периоде и перед выпиской из стационара, а также снижение самооценки собственной активности, самочувствия. У пациентов с идиопатическим сколиозом в послеоперационном периоде отмечается повышение чувствительности, нарастание склонности к зависимому положению от окружающих, пассивности, сосредоточенности на собственных проблемах. После получения терапии в раннем послеоперационном периоде, перед выпиской пациента из учреждения, отмечается повышение настроения и самооценки самочувствия у подростков. Самооценка настроения зависит от выраженности травматических переживаний у пациентов с тяжелыми деформациями позвоночного столба на этапе поступления в стационар и в послеоперационный период и не зависит от травматических переживаний на заключительном этапе восстановительного лечения. На заключительном этапе у детей с идиопатическим сколиозом необходимо осуществлять превентивные мероприятии, направленные на предупреждение развития симптомов посттравматического стресса после операции. Психологическая помощь у данной категории пациентов на этапах хирургического лечения должна быть направлена на предупреждение развития симптомов ПТС в послеоперационный период. Ключевые слова: подростки, идиопатический сколиоз (ИС), хирургическое лечение, переживание, самооценка.

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Psychological Profile of Children Who Require Repetitive Surgical Procedures for Early Onset Scoliosis: Is a Poorer Quality of Life the Cost of a Straighter Spine?

Cited by 35 publications

References 22 publications

High global satisfaction in magnetically controlled elongations in 29 early-onset scoliosis patients versus primary spinal fusion in 20 adolescent idiopathic scoliosis patients

High global satisfaction in magnetically controlled elongations in 29 early-onset scoliosis patients versus primary spinal fusion in 20 adolescent idiopathic scoliosis patients

Psychological aspects of treatment and rehabilitation of patients with adolescent idiopathic scoliosis: research analysis

The Dynamics of Experiences at the Stages of Surgical Treatment in Adolescents With Idiopathic Scoliosis

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