The authors declare no conflicts of interest RESUMO Objetivo: Identificar a percepção dos pacientes sobre o significado de ser portador de glaucoma e a percepção que tem sobre o tratamento clínico ou cirúrgico. Métodos: Para a coleta dos dados utilizou-se a pesquisa qualitativa através da estratégia de grupos focais realizados com pacientes em tratamento clínico (grupo 1) e pacientes submetidos à cirurgia antiglaucomatosa (grupo 2). A análise e a interpretação dos resultados foram feitas pela técnica da análise de conteúdo. Resultados: O medo da cegueira e a desinformação sobre a doença foram os aspectos negativos mais encontrados com relação a ser portador de glaucoma. O grupo cirúrgico preferiu a situação atual quando comparada à necessidade do uso de medicação. Verificou-se que tanto o glaucoma quanto o seu tratamento impactaram profundamente esses pacientes e que, embora a preocupação com a doença ainda persista, os pacientes operados demonstraram apresentar menos impacto no seu cotidiano. Foram determinantes para a aceitação da indicação da cirurgia a falta de controle da doença e a confiança no médico, sendo esta última considerada um fator primordial nos dois grupos pesquisados, o que aponta para sua importância, independente da decisão tomada pelo paciente na convivência com sua doença. Conclusão: Identificaram-se os aspectos negativos mais relevantes com relação ao glaucoma e ao seu tratamento. A confiança na correta indicação do tipo de tratamento, clínico ou cirúrgico, e uma relação sólida entre o paciente o médico são os fatores determinantes para uma maior tranquilidade dos pacientes em tratamento de glaucoma (clínico ou cirúrgico).Descritores: Glaucoma de ângulo aberto/psicologia; Glaucoma de ângulo aberto/terapia; Glaucoma de ângulo aberto/cirurgia; Qualidade de vida ABSTRACT Objective: To identify the meaning and impact on their quality of life of having glaucoma and to understand the patients' perception on the different types of treatment (medical or surgical). Methods: Through a qualitative research, focus groups were conducted with patients in clinical treatment (group 1) and patients who underwent glaucoma surgery in both eyes and were without medication (group 2). The responses were analyzed using the technique of content analysis. Results: Fear of blindness and lack of information about the disease were the most cited issues in relation to how it is like to having glaucoma. Medication costs, impact of drops on patients' daily lives and the side effects were the main points discussed in relation to medical treatment. All patients in the surgical
This chapter approaches the context of healthcare, observing how information system conceptual background can help to comprehend the evolution and adoption of emerging technologies on the applicable solutions. As a critical sector, both from economic and life quality points of view, healthcare is an excellent environment to observe how these tools and its associated infrastructure make it possible for new business organizations to be proposed. The chapter is aimed to develop a theoretical and practical comprehension around concepts through isolated and integrated analysis.
Information architecture and business models design have potential relationships when planning how one organization will plan and execute its operations. This relationship of these two conceptual constructs was the main objective of this chapter, analyzing how it can happen in healthcare services (HS) units. Understood as complex service units where data, information and knowledge are intensively produced and consumed, HS units are challenging contexts to observe this association, as several conditions and forces emerge to conform business models. Finally, motivations and considerations for managers and researchers were announced, allowing the continuity of this research, aiming to reach a strategic level for information and knowledge management for practical, service-oriented organizations.
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