the main diagnoses listed reflect the more frequent risks that patients undergoing hemodialysis are exposed to. Being aware of these risks allows the nursing planning with early interventions, in order to prevent complications related to the disease and to promote best life conditions.
Fatores infl uentes da qualidade de vida em pessoas com lúpus eritematoso sistêmicoFactors infl uencing quality of life in people with systemic lupus erythematosus Factores infl uyentes en la calidad de vida de personas con lupus eritematoso sistémico
Objective: To know the perception of health professionals and their families about fake news related to the COVID-19 pandemic. Method: Descriptive-exploratory study with a qualitative approach. Twenty-eight individuals participated, including seven physicians, seven nurses, and 14 family members. Data collection took place between August and October 2020, with audio-recorded interviews. After transcription, the content was analyzed using Content Analysis, thematic modality. Results: Three categories were identified: “Context of the occurrence and dissemination of fake news in times of pandemic”; “Consequences of fake news on the experience of the pandemic”; and “Coping strategies to contain/combat fake news”. Conclusion: Sociocultural, political, educational, and technological aspects influence the occurrence and dissemination of fake news, which have consequences such as: misinformation, self-medication, worsening in the professional-patient relationship, increased need for additional research, and fear in the population. To face the current situation, greater control by the State is required, with investigation and punishment of people who disseminate fake news, as well as greater awareness among the population on the subject.
Objetivo: apreender perspectivas e vivências do cuidador familiar sobre os cuidados prestados às crianças e adolescentes com Diabetes Mellitus tipo 1 (DM1) no domicílio. Método: estudo descritivo de abordagem qualitativa, realizada com 11 cuidadores residentes em um município no Noroeste do Paraná. Os dados foram coletados de fevereiro a maio de 2018, mediante entrevistas semiestruturadas, gravadas em áudio, e, então, submetidos à análise de conteúdo, modalidade temática, após aprovação do Comitê Permanente de Ética em Pesquisa com Seres Humanos. Resultados: foram identificadas duas categorias temáticas: “Dos primeiros sintomas à aceitação do diagnóstico: um processo sempre em curso”; e “As dificuldades que permeiam o cuidado no cotidiano”. Conclusão: as vivências relacionadas ao cuidado são permeadas por algumas dificuldades, especialmente em relação à aplicação correta da insulina, às restrições alimentares e à ausência de apoio por parte da escola, no controle alimentar e tratamento medicamentoso.ABSTRACTObjective: to learn family caregivers’ perspectives and experiences regarding home care given to children and adolescents with Type 1 Diabetes Mellitus (DM1). Method: in this qualitative, descriptive study conducted – after approval by the Standing Committee for Ethics in Research with Human Participants – with 11 caregivers residing in a municipality in northwestern Paraná, data were collected between February and May 2018 by recorded, semi-structured interview, and then subjected to thematic content analysis. Results: two thematic categories were identified: “From first symptoms to acceptance of the diagnosis – an ongoing process” and “Difficulties permeating everyday care”. Conclusion: certain difficulties permeated the care-related experiences, especially as regards correct application of insulin, dietary restrictions, and lack of support from schools in dietary control and drug treatment.RESUMENObjetivo: conocer las perspectivas y experiencias de los cuidadores familiares con respecto al cuidado domiciliario de niños y adolescentes con Diabetes Mellitus Tipo 1 (DM1). Método: en este estudio cualitativo y descriptivo realizado - previa aprobación del Comité Permanente de Ética en la Investigación con Participantes Humanos - con 11 cuidadores residentes en un municipio del noroeste de Paraná, los datos fueron recolectados entre febrero y mayo de 2018 mediante entrevista grabada semiestructurada , y luego sometido a análisis de contenido temático. Resultados: se identificaron dos categorías temáticas: “Desde los primeros síntomas hasta la aceptación del diagnóstico - un proceso continuo” y “Dificultades que permean la atención diaria”. Conclusión: ciertas dificultades impregnaron las experiencias asistenciales, especialmente en cuanto a la correcta aplicación de la insulina, las restricciones dietéticas y la falta de apoyo de las escuelas en el control dietético y el tratamiento farmacológico.
Objective: to describe the perception of pregnant women and their relatives about the vulnerability of a highrisk pregnancy. Methods: qualitative research with eight pregnant women and ten relatives. Data were collected through semi-structured, audio-taped interviews, which, after transcription, were submitted to content analysis in the thematic modality proposed by Bardin. Results: three categories emerged: Experiences of relatives and pregnant women in relation to the diagnosis of a risky pregnancy; The family as the structuring axis of care in a high-risk pregnancy; and Invisibility of relatives in prenatal care. Conclusion: both the relatives and the pregnant women experienced worry, anxiety, fear and stress in the face of vulnerability, but the pregnant women perceived themselves to be more protected and safer with the support of the family, which although did not perceived to be valued by health professionals during prenatal consultations, plays an important role in encouraging and supervising care during pregnancy. Descriptors: Pregnant Women; Prenatal Care; Pregnancy, High-Risk; Family; Health Vulnerability.Objetivo: descrever a percepção de gestantes e familiares sobre a condição de vulnerabilidade de uma gravidez de alto risco. Métodos: pesquisa qualitativa realizada com oito gestantes e dez familiares. Os dados foram coletados por meio de entrevistas semiestruturadas, audiogravadas, que após transcritas, foram submetidas à análise de conteúdo, modalidade temática proposta por Bardin. Resultados: emergiram três categorias: Vivências do familiar e da gestante frente ao diagnóstico de uma gravidez de risco; A família como eixo estruturante do cuidado em uma gestação de alto risco; e a Invisibilidade do familiar no acompanhamento prénatal. Conclusão: tanto familiares como gestantes vivenciam preocupação, ansiedade, medo e estresse frente à condição de vulnerabilidade, porém, as gestantes se percebem mais amparadas e seguras com o apoio da família, que embora não se perceba valorizada/considerada pelos profissionais de saúde durante as consultas de pré-natal, tem papel importante no incentivo e fiscalização dos cuidados durante a gestação.
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