Cotidiano de cuidado de adolescentes com necessidades especiais de atenção à saúde

Abstract

Objective: To understand the daily care of adolescents with special health care needs. Method: Qualitative study, based on the critical and liberating pedagogy of Paulo Freire and conducted in the pediatric outpatient clinic of a teaching hospital, in the second semester of 2016. The study was based on analysis of medical records, semi-structured interviews and construction of genograms and ecomaps of 35 adolescents with some kind of health demand. After the double transcription, the interviews were submitted to Pecheux discourse analysis. Results: The daily care of these adolescents occurs through personal hygiene, physical appearance, medication use, nutrition and modifi ed habits. The discourse of the adolescents presented different levels of emancipation: sometimes care was developed by adaptation and alienation, revealed by habits and by the need to develop the care through a technical reproduction, which contributes to oppression; and at other times it is developed with the possibility of emancipation, based on refl ection on their reality and on the action of positioning themselves. Conclusion: The daily care of these adolescents is full of possibilities and abilities at different levels of emancipation. The absence of dialogue, exchange of knowledge and refl ection can contribute to the process of oppression. Nursing professionals need to enable the exchange of knowledge and refl ection, so that the adolescent can transitions from a naive to critical conscience.

Adolescents with special health care needs: challenges of school inclusion according to family members/caregivers’ viewpoint / Adolescentes com necessidades especiais de saúde: desafios da inclusão escolar no discurso de familiares/cuidadores

“…The family is the determining link in the formation and Adolescentes com necessidades especiais... affective, cognitive, and social development of adolescents with SHCN. 5,6 Family routines are affected in the face of situations of change and stress, so it is essential to understand how these changes can be made to promote health. 23,24 When identifying the presence of SHCN, families can end up restricting CYSHCN to certain activities, demonstrating overprotective behavior and judge daily activities as dangerous.…”

“…The Children and Youth with Special Health Care Needs (CYSHCN) addresses children and adolescents between 0 to 18 years old (incomplete) who either have or are at greatest risk for developing a chronic condition, physical or developmental restriction, emotional or behavioral limitations, mild, moderate disability or severe. [1][2][3][4][5] CYSHCN requires specialized interdisciplinary, health, or educational care, capable of understanding CYSHCN and their families. 6 The care demands presented by this clientele are classified into six groups, as follows: Developmental demands (they need psychomotor and social rehabilitation); Technological (they need some technological device in their body); Medicines (drug addicts); Modified Habits (adaptations to carry out daily activities); Mixed (association of two or more care demands); Clinically complex care (a combination of all of the above including life support technologies).…”

“…6 The care demands presented by this clientele are classified into six groups, as follows: Developmental demands (they need psychomotor and social rehabilitation); Technological (they need some technological device in their body); Medicines (drug addicts); Modified Habits (adaptations to carry out daily activities); Mixed (association of two or more care demands); Clinically complex care (a combination of all of the above including life support technologies). 1,5,[7][8][9] In the literature, it is possible to find several nomenclatures in an attempt to name a characteristic, without stigmatizing it, so Special Health Care Needs (SHCN) encompasses deficiencies that require different treatment, chronic, transitory, or definitive conditions. In education, there are specialized educational needs for children and adolescents that require differentiated educational support strategies, when regular education does not guarantee the integration and inclusion process, called Special Educational Needs (SEN).…”

Cuidados de enfermagem a crianças/adolescentes com necessidades especiais de saúde hospitalizadas em unidade pediátrica

“…Este grupo foi descrito pela primeira vez na literatura internacional, como Children With Special Health Care Needs (CSHCN) (MCPherson, 1998) e, posteriormente, foram traduzidas para a língua portuguesa como Crianças com necessidades especiais de saúde (CRIANES) (Cabral, 2004). Pertence ao grupo de CRIANES a população de crianças e adolescentes entre 0-18 anos de idade (Silveira & Neves, 2019), que apresentam condições crônicas de vida, sendo elas físicas, de desenvolvimento, comportamental ou emocional, as quais, requerem maior demanda dos serviços de saúde e atendimentos realizados por equipe multiprofissional de saúde (Arrué et al 2016; Góes e Cabral, 2017).…”

“…O cotidiano de cuidado de CRIANES é permeado pelo desenvolvimento de atividades que fazem parte do dia a dia de cada criança/adolescente e favorecem para que os mesmos tenham maiores chances de sobrevida (Silveira & Neves, 2019). O cuidado está intimamente ligado a família e, diante desta perspectiva, é compromisso de todos os membros da equipe de saúde a consideração do binômio criança-família, bem como, incluir a família no cuidado, sendo corresponsável, criando formas de amenizar as dificuldades encontradas ao processo de hospitalização desta criança (Silva et al 2019).…”